We make people (and technology) better at Mount Sinai. Opinions are my own.
New York, USA
- Tweets 9,403
- Following 407
- Followers 36,320
- Likes 15,317
Pinned Tweet
With some new followers on board, I wanted to take the time to re-introduce myself to the #LongCovid community (and everyone else). I’m David Putrino: Director of Rehab Innovation at @MountSinaiNYC, Associate Prof at @MountSinaiRehab for @IcahnMountSinai 1/
79
130
1,122
Feels like a good time for a little reminder: Countries aren't supposed to be run like businesses. Countries are supposed to spend money to support and serve their people. This means spending to support those living below the poverty line, the disabled and historically 1/
141
5,875
36,875
580,445
Tragic to say this out loud, but here it is:
As a #LongCOVID researcher, I strongly urge the public to ignore recent @CDCgov guidance and input from @CDCDirector on the topic of #COVID. It is NOT based on consensus science and it has NOT been designed to protect you. Disgraceful
177
2,579
6,623
289,910
Ok. As promised, here is a super-🧵 on cognition and #LongCovid. This will be a combination of published material and things that we have observed in-clinic. This is not intended to be definitive nor epidemiological and so it is highly likely that your personal experience (1/n)
81
1,394
4,114
Of all the "COVID-recovered" people who are kindly emailing us to participate in our study (meaning they had COVID >12 weeks ago and feel recovered), only about 1 in 5 are actually passing our screening questionnaire. The rest actually have persistent symptoms. #LongCOVID
78
1,138
3,428
When someone is seriously ill with #LongCovid and presenting to a health care provider for help, “all your tests came back normal” should be the words that trigger the beginning of an extensive investigation, not the end of a superficial one.
86
625
3,398
Dangerous garbage being presented “science writing”. Two *actual* facts surrounding #COVID infection:
1. Your risk of #LongCOVID, a currently incurable chronic illness, after surviving an acute COVID infection currently sits conservatively at ~6-7%
2. Your risk of LC increases 1/
Opinion | Why it’s time to stop scaremongering about Covid
It’s wrong to try to change minds by distorting the science, writes @ClareWilsonMed
trib.al/2Vei5ST
83
983
3,080
465,124
I don’t know who needs to hear this, but if someone with #LongCovid tells you that they feel cognitively impaired, but they’re testing “within normal limits” please don’t tell them that it isn’t a concern. High functioning people who have lost function should be concerned.
80
424
2,906
excluded groups. This means investing in research that doesn't immediately have a profitable output so that future innovations can be incubated and accelerated through companies that form within the country that supported the work. This means engaging in international aid so 2/
1
252
3,288
29,973
After 8 months, we just received the news that @NIH WILL NOT be funding our #LongCovid microclot study. They declined to provide reviewer comments. I'm so sorry to everyone in the community who was counting on this work, I don't know what to say other than we will keep fighting
151
669
2,633
New rule: Unless you're a person with #LongCovid or a clinician who is managing an endless waitlist of people with LC, how about you just keep your damn mouth shut on the topic of how the risk of LC is now "only" 5-10%? That is an enormous number. We should be screaming.
50
430
2,506
Ok. One last time: #LongCOVID, #PEM and exercise. Let's talk and I'll try to be REAL clear and REAL simple. If someone has PEM, exercise is contraindicated. Not only do you not prescribe/suggest exercise, you recommend avoiding exercise. That's it. Simple. No gray area.
Why? 1/
66
882
2,537
240,390
What a week for public health 🤦🏻♂️
I don’t know who needs to hear this, but: surviving an infection doesn’t make you “stronger” for it. Surviving a #COVID19 infection leaves a mark. Like a boxer, every fight leaves it’s mark on your body. It can be an easy fight or a hard fight 1/
52
793
2,474
202,754
Them: what’s challenging about #LongCovid is that there are no objective signs and symptoms. Everyone tests “normal”.
Me: Hi and welcome to the clinic. Could you plz stand for 10mins
~70% of ppl with LC: *legs change color and HR spikes*
That seems objectively not normal.
51
454
2,372
It’s 2023. That means my clinic is now seeing a new generation of #LongCovid patients who say “I didn’t think this would happen to me, I got through the last *n* infections just fine”. Be careful out there: viruses don’t care about the pet theories you tell yourself to feel safe
72
778
2,384
139,259
A common refrain on this app: “I’m A cOnSErvATiVe aNd nO oNE i KnOw haS #longCOVID. OnLy LiBeRalS”. Our clinic sees the spectrum of race, gender and political views - LC doesn’t discriminate. But PEOPLE discriminate. So a common thing we see is that conservative patients often 1/
41
447
2,378
208,136
Incredible talk here at the #UNGA80 #indoorair call to action from our very own Violet Affleck! Reminding us that #longcovid affects all of us, the #covid19 pandemic is ongoing and we have failed to protect our children. Thank you, Violet, for speaking the truth to this room 🙏🏻
57
798
2,787
233,814
Them: Microclots and platelet hyperactivation in #LongCovid can't be quantified by conventional standards, so we shouldn't use it as a biomarker
Us: Hold our beer(s).
Step 1: Take blood, spin blood, stain blood, look at blood under a microscope and capture an image of it 1/
77
748
2,345
We are in our fourth year of work to understand #LongCovid and we now know things about it thanks to science. After being told again by a quasi-well meaning, if uninformed, clinician that LC is just functional neurological disorder (FND). Here’s a 🧵 on why LC IS NOT FND (1/)
86
941
2,189
449,125
Time for a 🧵 about metabolically-led post-exertional symptoms. This is quite possibly the most dangerously misunderstood piece of #LongCovid, #MECFS and infection-associated chronic illness puzzle (including non-viral pathologies that involve mitochondrial damage). (1/n)
73
818
2,225
that when terrorism and anti-freedom sentiments try to take hold in other countries, it is shut down because the country being organized against is viewed as an ally. Government spending is supposed to serve the people. There's nothing wrong with questioning it, but so far, it 3/
3
189
2,316
26,651
You know what, #medtwitter? Fair warning: I’m coming into the week pretty pissed off. I spent the MLK day weekend catching up on reading and thinking about the experiences of people with #LongCovid, chronic #lyme, #MECFS and other PAIS. I finally read Brian Vastag’s touching 1/
104
608
2,049
238,757
Because I haven't seen it posted here, I just wanted to share what our "enemies" (insurers, worker's comp, long-term disability auditors) are saying when people with #LongCovid are trying to access rights that they are entitled to since they were diagnosed with 🧵(1/)
62
707
1,971
Soon, we will be formally announcing the launch of our new clinic: a center dedicated to recovery from complex chronic illnesses. In this clinic we will treat folks with conditions like #EDS, #LongCOVID, #MECFS and #LongLyme. We were incredibly intentional about the decision 1/
97
465
1,965
214,819
[TW: story about severe ME/CFS]
Some time ago, a person with severe #MECFS requested that I visit with them. It has been a while since I was there and I’m still working through everything I heard and saw that day. This person had been unwell for many years and their (1/)
95
770
1,944
602,343
don’t share with their friend groups that they’re struggling with #LongCOVID because they fear stigma and judgement (‘I don’t want my friends to think I’m crazy’). Instead they suffer in silence. It is really sad, it is really lonely and I wish it weren’t like this. /end
23
183
1,893
84,366
Working with a #LongCovid patient who just isn’t getting better no matter what you try is tough and confronting. That’s why we hired a psychologist. For our STAFF. That way, they can process those feelings of frustration/failure and not be tempted to gaslight/blame their patient.
68
401
1,856
105,917
Thrilled to announce that the first of our #LongCOVID papers from our collaboration with the incredible @VirusesImmunity has been published in @Nature today. This work is incredibly important as it highlights clear objective differences in the blood 1/ nature.com/articles/s41586-0…
53
658
1,867
318,323
is very well worth mentioning that the current administrations last few weeks of rapid government decisions have disproportionately hurt red states, favored the wealthy business owners and eroded the majority of citizens' fundamental safety nets and protections. I'm not here 4/
2
171
2,000
22,401
The folks out there pushing Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for infection-associated disease states like #LongCOVID, #MECFS and chronic #Lyme produce bad science and peddle harmful/dangerous rhetoric are truly deplorable, but what's more, 1/
60
624
1,778
133,535
An historic moment yesterday as we started @IcahnMountSinai's first ever course for med students about infection-associated complex chronic illness. We discussed #LongCOVID, #MECFS, chronic #Lyme and much more. Students were intrigued, inquisitive and eager for more!
103
393
1,670
108,458
This afternoon (US time) I was asked for comment on the recent statements on #LongCOVID in Australia. Here is the statement I provide:
As a scientist, an Australian and one of the world's leading authorities on LongCOVID I was disgusted to see John Gerrard's irresponsible 1/
🥺🥺
Dave... Please don't look at the local Aussie News... It will break you🤬
Long Cøvid Awareness Day and the Minimisers are out in full dress uniform...
A Congo Line of shitheads☹️
51
665
1,661
180,339
Honestly I just can’t with these “journalists” who claim to be allies of those with complex chronic illnesses, yet they attack studies like the recent VA study showing an alarming number of folks with #LongCOVID with an almost religious fervor. It’s transparent and pathetic. 1/
30
309
1,594
In addition to the ever-growing #LongCovid toll, here’s something that weighs on me daily since our governments collectively decided the pandemic was over and has begun a gradual retraction of protections ever since:
I work at a hospital in NYC. In order for me to get to 1/
33
380
1,550
Felt this hard today.
Every clinician/researcher who has touched #LongCovid, #MECFS and chronic #lyme should see this as the unacceptable price for decades of underfunding, stigma and ignorance.
Every patient who is seeing this and being affected: Please hold fast if you can ❤️🩹
Lauren was one of my oldest, coolest friends. She was kind, funny, intelligent, and always up for an adventure.
Severe #MECFS forced her into choosing euthanasia because the alternative was worse.
The pain is unimaginable. Rest in peace, my love.
#DagLieveLauren
37
405
1,578
170,702
trying to argue the right or wrong of these decisions, but I'm tired of the spin. Wealthy people show be comfortable with the idea that governments will make decisions that don't help them - they should be comfortable with the idea that the country that enabled them to become 5/
1
143
1,742
19,793
I know today is a frightening day for many with #LongCOVID, #MECFS, chronic #lyme and other infection-associated chronic conditions. Today, all I can offer is a small piece of advice and a small piece of reassurance. Advice: please take care of yourselves and practice some 1/
56
306
1,605
128,230
Here’s the thing: whenever we publish a #LongCOVID paper it is the most-read thing on the journal, whenever we write a LC opinion piece it is the most-read thing on that outlet. Millions with LC are fighting for basic survival, and politicians: I promise you that for every 1/
Thank you DER SPIEGEL for featuring our work on #longCOVID through this interview with @VHackenbroch and Nina Weber.
Currently at the top of the most-read stories on the @derspiegel website 💪🏼
spiegel.de/gesundheit/diagno…
12
362
1,510
103,685
wealthy makes policies that allows others to build wealth and be prosperous at their fractional expense, rather than aggressively fighting to destroy the middle class and increase the wealth gap because they feel entitled to control government due to campaign contributions 6/
3
137
1,649
17,869
Thank you @ChrisCuomo for having me on to discuss the effects of #covid19 and #longcovid on the immune system and general health. Remember: we have no evidence to suggest that even mild #COVID infections are “harmless”, but we do have evidence to the contrary. Prevention is key.
What’s behind the post covid sickness surge? The vaccine? Immunity suppression? Long Covid? The answer is there is not one answer. It’s complicated and we have to keep the conversation going. Dr. David Putrino, Dir. of Rehabilitation Innovation of Mt Sinai Health System joins me to discuss
46
504
1,505
84,472
Shame on everyone who put petty political grandstanding over lives. This ban will worsen community health and increase risk of #LongCOVID. @CDCDirector: actions have consequences. When you release statements minimizing the seriousness of COVID-19, this is what gets emboldened.
It's official: Mask ban in Nassau County, New York passes along party lines, 12-0 (7 abstentions). It makes wearing a mask a misdemeanor (with unclear health and religious exceptions) and gives police the power to fine people wearing a mask $1,000 and sentence them to jail time.
40
415
1,426
53,962
US administration vowed to "make america great again":
A country that can't provide aid to the unhomed and poor is not a great country
A country that cannot provide free healthcare to old folks, disabled folks, kids and veterans is not a great country
A country that cannot be 8/
4
191
1,578
14,926
Imagine being triggered by a 19 year old person for giving a talk that shares peer-reviewed science, offers recommendations for common sense policies to protect the health of CHILDREN and asks us to care about ppl with #LongCOVID.
What an unserious bunch of snowflakes
❄️❄️❄️
26
240
1,624
26,233
I am humbled to announce that thanks to a generous grant from @cohengive our #LongCOVID center (opening early 2024) will work to understand the differences and similarities between LC and #Lyme, #MECFS and other infection-associated chronic illnesses. 1/
mountsinai.org/about/newsroo…
89
352
1,405
261,665
Small note to all the clinicians expressing “regret” over the “needless” deaths of pw #longcovid and #mecfs because “we have the tools to help”
With all my heart: go fuck yourselves.
We have no approved therapies.
Pretending otherwise with your uninformed arrogance kills.
Felt this hard today.
Every clinician/researcher who has touched #LongCovid, #MECFS and chronic #lyme should see this as the unacceptable price for decades of underfunding, stigma and ignorance.
Every patient who is seeing this and being affected: Please hold fast if you can ❤️🩹
62
340
1,353
104,661
None of my #LongCOVID presentation at Keystone was confidential. In fact there was a point in my presentation where I literally urged listeners to share widely and break the conference photography rules. My team’s science is intended to be shared and communicated widely.
24
208
1,588
40,579
I know #LongCovid twitter has been buzzing today bc @NIHDirector has unambiguously named viral persistence as a driver of LC pathobiology. I’m thrilled to see this too and I view it as an historic moment. However, today I’d like to do a little @microbeminded2 appreciation post 1/
The NIH director clearly states COVID is a virus with persistence, with the agent being found in tissues & nerve cells. @jeremyfaust seemed to doubt initially. Will “experts” start taking 1-2x forced Covid infections annually in our children more seriously now?! @fitterhappierAJ
28
440
1,401
155,556
Tell me again how CBT and GET are actionable treatments for #LongCOVID, #MECFS and other disease states where PEM is a symptom? #MedTwitter: if you're still prescribing exercise for these conditions you're causing damage. This is malpractice.
nature.com/articles/s41467-0…
46
474
1,375
119,631
I’ve been quiet on this platform this week as I had the privilege and singular honor to be invited to a very remote location in Kenya, working with the Maasai people to better understand their physiology. Why am I telling you this?
1. Because it is objectively awesome
1/
51
252
1,349
170,314
Wanted to check-in with these new @NIH changes that are going to affect so many. First let me remind everyone: I run 6 hybrid clinical/research centers, each with a specific clinical focus. Unlike the vast majority of my colleagues, federal funding sources account for less 1/
34
369
1,504
175,695
unyielding principle that the “pandemic is over” crowd fails to grasp is that we live in a society. And if our society was not so incredibly fucking ableist and individualistic, it wouldn’t be a stretch for citizens to realize that public space is shared by people with 4/
4
162
1,259
A tumultuous 24-ish hours since our preprint was released yesterday. I mentioned that this was a fraught issue and I genuinely do understand that people have mixed feelings about the work. I wanted to take some time to respond to some of the concerns and comments that have 1/
86
345
1,483
206,389
viewed as a thought-leader and force of compassion and peace internationally is not a great country
A country that is so insecure about its identity that it bans words and concepts from general discourse and discussion is not a great country.
These are not judgements from me 9/
2
142
1,440
13,062
they were able to make. That's a good way to think about investing in a company, not in a country. We can all agree that spending patterns could be changed and different levers can be pulled to change things, but there are some fundamental truths we cannot ignore: the current 7/
1
118
1,382
15,515
I could not be more excited to be looking into the role of low-dose, weekly rapamycin to treat #LongCOVID. Hugely grateful to @polybioRF for their faith in us to get this exciting trial done right in collab with @VirusesImmunity and others. Looking to begin recruitment Q1 2025 🙏🏻
We are excited to announce an $800,000 donation to Mount Sinai to support a clinical trial of the drug rapamycin in patients with long COVID. The trial will be conducted at CoRE: a clinic directed by Dr. David Putrino and PolyBio's Dr. Amy Proal:
polybio.org/polybio-supports…
44
257
1,249
70,389
policies, to live up to these core values. I think this is a time for soul-searching and I hope that people can take this thread in the spirit of that. Who do we want to be? How do we want to be perceived? If you want respect, be worthy of respect. end/
16
119
1,360
12,394
Thank you @ChrisCuomo for having me on to discuss #LongCOVID this week. It means so much to millions that you have been using your platform to relentlessly cover this issue when so many others have turned away. As this latest NASEM report shows, we need action now more than ever
Long covid is real and more significant than many thought. And while we all would like to turn away from this collective issue, it’s now the time to face the problem so that we create awareness and find treatment. Dir. of Rehabilitation Innovation at Mt Sinai Health System, Dr. David Putrino and Cornell University Virologist, Dr. John Moore join me to discuss a new report that shows how serious long covid really is
30
316
1,215
132,223
since 2020 and have been consistently wrong since 2020. Magical thinking doesn’t make you safe and speaking realistically and quantitatively about risk stratification doesn’t make you a fearmonger. Writing junk like this DOES make you dangerous. Grow up, Clare.
/end
17
137
1,188
53,619
Here’s an ounce of data. Per your bio, it should be worth the thousand pounds of opinion you just aired? We showed clear signs of immune dysfunction in folks with #LongCovid. Plz don’t make uninformed public statements like this one. People listen to you.
nature.com/articles/s41586-0…
11
218
1,164
83,160
A deeply moving story from @thesicktimes covering the reality that @thephysicsgirl and Kyle having been living for years now since Dianna got #LongCovid. The reality of bed bound individuals with infection-associated chronic conditions is grim. While 1/
thesicktimes.org/2024/09/17/…
15
410
1,185
149,855
about any one administration or any country, these are reminders of some of the core values of the US. It's up to every person to ask if we're living up to these core values every day. If we're contributing our labors to a country that intends, through its words, actions and 10/
1
116
1,286
13,090
let me remind you: #LongCOVID is life-changing and incurable. LongCOVID is caused by #COVID. We still have no way of predicting who will emerge unscathed from a COVID infection. The only way to avoid getting LongCOVID is to not get COVID. Let me also remind you that while 4/
5
259
1,153
46,276
Just a friendly reminder that if seeing a photo of a masked person hurts your wittle feelings so much that you need to tweet abusive things at strangers:
Do consider therapy ✅
Don’t @ me ❌
Thanks for reading, snowflakes ❄️👍🏻
40
118
1,223
32,882
Today is #LongCovidAwarenessDay. A day for acknowledgement of the now hundreds of millions of people worldwide who have had their lives indelibly changed by #LongCOVID. This year's Long COVID Awareness Day comes with an edge, though. If we were a thinking, anti-ableist 1/
30
423
1,127
65,953
Today's 🧵 is about autonomically-led post-exertional symptom exacerbation (PESE) in #LongCovid, #MECFS and other infection-associated chronic illnesses. This form of PESE is different to metabolically-led PESE, but it is also possible to have both occurring at the same time (1/)
50
424
1,139
I don't like any confusion or lack of transparency about our thoughts/approaches regarding our research strategy surrounding #LongCOVID, chronic #Lyme, #MECFS, vaccine injury and other complex chronic illnesses that we study, so I wanted to post an end of year thread to share 1/
59
329
1,118
153,404
I’ve been fortunate enough to have some time to stand back and reflect on the state of the field of post-acute infection syndromes(PAIS)/infection associated chronic conditions (IACC) such as #LongCOVID, #MECFS and chronic #Lyme and I wanted to share some opinions. Before I 1/
1
276
1,103
156,532
Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has 1/
bmj.com/content/389/bmj.r977
Community note
This article says it's about ME/CFS, yet doesn't quote the current research and evidence on ME/CFS and instead uses,
articles on fatigue and functional syndromes as an argument. PEM is not fatigue and ME/CFS is not a functional syndrome.
Current MECFS research:
meassociation.org.uk/research-index
37
405
1,268
61,443
Some of these #LongCovid, #Lyme and #MECFS minimizing clowns really, deadass think that we’re just going to stop looking for answer for our patients because they say so. “Stop publishing about microclots, we can solve this with talk therapy”, or “Don’t talk about viral 1/
26
264
1,074
90,939
I've been busy the last week or so, you know, actually working the fucking problem and so I was unable to immediately react when the same old clown car of 'experts' (i.e. clinicians on twitter who have not actually read or understood the literature on #LongCOVID) tagged this 1/
28
299
1,097
121,710
Step 5: Thank our wonderful collaborators like @resiapretorius, @VirusesImmunity, @microbeminded2, @VitalikButerin who make rapid research and discovery like this possible. To the #LongCovid community: every time the establishment raises a barrier, we will knock it down fast /end
31
91
1,053
expediency, not science. To folks with #LongCovid, chronic #lyme, #MECFS and other PAIS who follow. I’m sorry for the rage. I’m usually better at regulating and this morning it just all got away from me. I’ll suck it up tomorrow. Everyone else, as always: see you in hell. /end
75
57
1,085
13,760
different needs to them. That the choice to accept a personal risk of COVID infection should not give you the right to place others at risk or endanger vulnerable populations because you are sharing public space with people who are literally going to step off the train and 5/
1
108
1,017
Today, a post about viral persistence, antivirals and how it plays into the complexity of #LongCOVID and other post-acute infection syndromes (PAIS). If you've been following me for a while, you probably know that I've been saying for a few years now that LC is a complex 1/
31
326
1,086
88,392
@NIH - HOW do you have the audacity to fund even a single exercise therapy/CBT trial for #LongCovid, let alone a whole mess of them and expect to be taken seriously by a patient population that has such large representation from former athletes and high performers? Why are you 7/
8
141
1,051
18,114
obituary for Beth Mazur and I just need to ask: how many more? How many more stories do you need of vibrant, exceptional people being cut down in their prime by these illnesses to finally act? How can you read what @meghanor and @danaparish articulate about chronic #lyme and 2/
4
88
1,038
21,495
with each infection.
Now, in the face of this information, there are really five (or so) types of reactions:
1. Disbelief and denial
2. Being unaware or uninformed of the risk
3. Believing appropriate caution is necessary to avoid Long COVID
4. Believing it is worth the risk 2/
4
149
1,016
40,439
Shame on you, our population deserves better. What about you @CDCgov, and @CDCDirector? Care to take some steps to encourage people to, you know, not get infected by a devastating pathogen that can cause lifelong disability? Masks, free tests, HEPA filters, clean air? Any of 10/
5
133
1,010
13,542
#tbt to the time I was at a #LongCOVID conference that was being filmed. After ~3hrs of listening to the science of LC the cameraman left and refused to come back out of fear of getting COVID and I remember thinking “damn, what an appropriate and proportionate response to facts”
12
211
994
33,092
who want to come at me to continue to minimize #LongCOVID, #MECFS, #Lyme and other infection-associated complex chronic illness with your laughable pseudoscience and bad takes:
- You're the absolute worst.
- We are coming for you.
- (as always) I'll see you in hell.
🙏♥️
45
63
1,006
25,489
Another bright spot of news in a day of good news: I am DELIGHTED to announce that @ravenscimaven has joined our team and will be leading the rapid development of FREE educational content for #LongCOVID, #MECFS, #EDS, chronic #Lyme and other PAIS polybio.org/projects/open-lo… 1/
44
195
993
41,678
Th Le cognitive dissonance on display by @joerogan here is astounding. Starting with “people are sheep” to “that guy wearing a mask should be fired”. In January of 2025, the guy wearing a mask IS the outlier not conforming to social pressure. What you are, Joe, is a bully. Weak.
Joe Rogan: "There's a lot of people that are cowards ... I would fire this guy ... you can't be wearing a fucking mask. This is crazy."
Imagine being so bitter and offended by someone protecting their health while providing you a service for a living?
44
155
1,128
35,001
their experiences with me and my team. We are learning so much from this extraordinary community and we are endlessly appreciative of the kindness, selflessness and partnership that you continue to entrust us with. Thank you. 🙏🏻 (End)
37
34
985
22,354
So excited to finally see this study out in pre-print! This study is the largest of its kind to date: Using data from 4,244 people with #LongCOVID, #MECFS and other complex chronic illnesses, we took hundreds of thousands of data points across hundreds of days to see if we 1/
23
334
1,094
88,911
mandates. Our citizens clearly can’t be trusted to make the ethical, pro-social decision for themselves, so maybe you can save a few thousand lives of critically ill patients in hospitals and a few hundred thousand people from #LongCovid while you’re at it. /end
15
75
931
Everyone still trying to explain away PEM as DOMS/deconditioning needs to read this. I’ve lost count of my #LongCOVID, #Lyme and #MECFS patients who were former athletes. Who know *better than non-athlete doctors* what DOMS and deconditioning feels like. This ain’t it.
What my “exercise” looks like now…if I’m ambitious, washing the dishes or using the vacuum with ear protection. If I’m doing REALLY well, @TheAlinker.
Before nursing school, I was a Division I collegiate track captain & worked as a personal trainer.
ME is not deconditioning.
ALT Female white athlete sprinting on curve of red track wearing a red Nike Boston University uniform with white spiked shoes. Number 55 number on stomach. Another athlete is in the background to the right with a white and black uniform. Another athletes arm is blurred in foreground on left. Crowd in the stands behind them.
ALT Woman wearing a white hat, pink jacket, grey pants and black shoes riding a bright yellow walking bike (Alinker) facing away from the camera. A small tan dog on leash sniffing the ground. Little boy is wearing a black hat, black checkered jacket, grey pants, and black shoes while sitting on rock in front of a river in the winter time. No leaves on thr trees but leaves, dirt and frost on ground.
45
270
994
66,282
I love it when the “sanctity of life” crowd also talk about the elderly and disabled being expendable in service of the economy with a totally straight face.
11
213
922
Hey @CDCDirector: just curious - do you ever review *checks notes* your OWN DATA before *checks notes again* publicizing public health policy that will disable millions of Americans? No? Didn’t think so. #LongCovid
The rate of people experiencing #LongCovid has jumped to 6.8% of all US adults, up from 5.3% just four months ago.
That's 1 in 15 adults, and is the highest it's been since 2022.
We can reasonably expect a future increase from January's wave.
cdc.gov/nchs/covid19/pulse/l…
15
266
962
47,085
#MedTwitter: Infection-associated chronic illnesses like #LongCovid, #MECFS, #Lyme and #MS are real, but cookie-cutter, non-specialized testing does not pick them up. Studies that show that LC patients test normal on normal testing are simply indicative that we need better tests.
28
244
960
With very little due respect to this tweet: STOP minimizing getting infected with a virus that causes a life-altering chronic illness, #LongCovid, at least 10% of the time. At the very least, public health orgs that FOLLOW THE SCIENCE should raise the alarm EVERY time a new 1/
With all of due respect, there is absolute NO CONCERN of Omicron EG.5 in South Africa or most of the world. It would be a good idea if people STOP to spread alarm when a lineage of Omicron emerge or giving SILLY NAMES, this one is called 'Eris' by a single scientist, that has no approval of WHO or any other public organization. It is like 'crying wolf' for at least the 10 last lineages, so when one important come, we may not give attention...
85
221
953
163,117
I really hesitated to share this experience, but ultimately I decided to share for a few reasons:
1) We so rarely hear about the day-to-day reality of those who live on the extremely severe end of the #MECFS spectrum, it is crucial that we understand what so many are going (9/)
2
88
935
38,281
Why the hell is anyone agreeing to take off their shoes to get on a plane that doesn’t require masks? Safety from shoe bombs but not from #COVID19 or #LongCOVID? Give me a break.
22
156
877
disgusted. In short, how can you view so much suffering every day and have the casual cruelty, the nerve even, to say "you're just deconditioned" or "the brain can have a powerful effect on the body” as though that has any utility in explaining what is happening to these folks 6/
5
81
918
15,672
Just in case you were wondering why I’m just one big constant eye roll when these so-called experts who treat functional disorders tell us that they “have the tools” to treat complex patients and frame those of us who are actually doing the work as “anti-recovery activists”, 1/
21
181
905
79,233
Let’s say it again for those in the back: the only way to avoid #LongCOVID is to avoid getting #COVID. If @POTUS still wants to declare the pandemic over, then maybe it’s time to declare the new pandemic: the Long COVID pandemic.
nature.com/articles/d41586-0…
22
321
883
ICYMI, @CDCgov: we are still waiting for the @CDCDirector to acknowledge that every #COVID infection places you at risk of #LongCOVID, rather than talking about death and hospitalization like it is the only serious consequence of SARS-CoV-2 infection. This is a bad look.
ICYMI: CDC updated recommendations on how to protect yourself + others from common respiratory illnesses like COVID, flu, & RSV. We're giving clear, commonsense solutions that are easy to understand and follow. Check it out 👇
25
276
887
42,405
Again for those in the back:
👏🏼 PEM 👏🏼 is 👏🏼 NOT 👏🏼 deconditioning
Symptoms associated with effort expenditure in #LongCOVID, #MECFS and other energy limiting illnesses are physiological, not “preferential”
Thanks to @RobWust for this incredible work.
medrxiv.org/content/10.1101/…
7
360
1,028
28,843
to yourself AND OTHERS to live your best pre-COVID life
5. Not having the financial freedom to not risk yourself and others by not taking precautions
Regardless of which of these 5 lanes you live in, won’t change the first two FACTS. So, as a person of questionable influence, 3/
3
103
886
22,631
I was asked about my opinion on this recent study into #MECFS and I wanted to share here as well. First and foremost, sincere congratulations to the research team for some stellar work. I will never stop cheering for groups that are working to uncover the biological 1/
1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
18
258
1,021
62,735