#LongCovid #ImmuneDeficiency Disabled demi gal in TX writing about science, politics, doomsday prepping, mutual aid & more. NO MAGA, MINORS, OR AI!
Houston, TX
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Mutual Aid Thread
Sunday July 5th
You know the drill, drop your needs in the comments, like & share, donate if able. Find more threads like this in the comments as well.
I am in a crisis right now and urgently need assistance as well ⤵️
Unhoused (again), disabled, immune compromised, and starting over from scratch. No meds, no food, no clothes, no gear to live out here. Urgent help needed TODAY. Story below.
🅿️paypal.me/froglet80
💲cash.app/froglet80
💰venmo.com/u/froglet80
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pro tip: "well, what else would it be?" is an interesting window into their minds and gets you off the hook from trying to explain grad school linguistics & anthropology to a 4 yr old 😄
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you can request a visit from lds/mormon missionaries via their website fyi. saturday morning at 7am sounds good....
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if the lid is the only issue i would leave it on the ground in front of it. preferably untied, with food scraps it. make it their problem.
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yea, her surrogate is now sterile because of her failure to disclose placental issues as the reason for needing one. yet she is still trying to blame the first surrogate for killing her baby. its like sweetheart, your genes killed your baby. and almost 2 innocent women.
everything about this horrified me but the woman saying everything went fine with her second surrogate when she in fact had to have an emergency hysterectomy to save her life that chilled me to the core
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most of y'all have never read any of the research published during the firs 5 years of the AIDS crisis and it shows in so many ways
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he followed the rules. he had a green card. he was following the rules when he went to replace his id. and they did this to him. its critical to recognize it isnt about rules. its about non-white immigration. it always has been.
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Remember how in the eighties, everyone mistook the fact that the first cluster of patients with AIDS were all gay men, to mean that only gay men could get it, so they didn't connect the dots when people getting blood transfusions fell ill until a few more years went by? 🧵
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i basically grew up thinking aunt was the term for any older female that was close to our family lol
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so, here's the shit we need to talk about.
EVERYONE HAS LATENT VIRAL INFECTIONS FROM CHILDHOOD.
everyone. fully vaxxed or fully unvaxxed. you have at least a few.
your t cells keep them in check usually.
SARS-CoV-2 infection kills t cells & can allow reactivation
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ten reasons SARS-CoV-2 should be more feared than hiv
(warning: i learned to count from @1goodtern)
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the guy that discovered hiv tried to tell us in 2020 that sars2 was similar genetically but y'all made it about politics
other researchers tried to tell us in 2020 that it similarly uses cd4 receptor as an alternative to ace2, to infect t cells, like hiv does but yall made it political.
doctors treating patients very early in wuhan tried to tell us it causes profound lymphopenia and honestly those words in the same sentence as novel virus alone should have been a clue but yall made it political
so enjoy the politics. maybe they have elections in hell.
There are facts about COVID that should have brought the world to a screeching halt, but instead we allow ABLEIST/CAPITALIST campaigns of neglect to overshadow:
1.)SARS2 -> disability
2.)SARS2 in the brain/marrow
3.)SARS2 -> risk of CVD/Dementia/Cancer
4.)SARS2 -> AIDS
...
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I have a literal acquired immune deficiency, yes actually the exact same issue best known for being caused by HIV, except mine was caused by SARS-coV-2. This is officially documented in my medical records and is being treated by a medical doctor.
🧵
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40 million globally with HIV. 400 million globally with Long Covid. Ten times as many in a tenth of the time. We might want to un-ass our collective head sometime real damn soon.
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the therapist cut them off because they saw red flags that continuing would potentially make them a mandated reporter i bet
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I have masked in indoor public spaces for 5 years. Today, with a cold front bearing down on us and in desperate need to wash my winter clothes - and thankfully with funds to do so because of a generous donor - I found myself in an impossible situation 🧵
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I would just like to remind everyone who is so excited about reactivated EBV and CMV that those were the most common early presentations of people living with AIDS in the eighties.
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someone really needs to examine how exactly measles is occurring in fully vaccinated people post-covid, because unlike the covid jabs the one for measles provides sterilizing and durable immunity. Or used to. What changed? None of the possibilities are good.
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i was today years old when i learned the virus that causes chickenpox and establishes lifelong latency ... INFECTS FUCKING T CELLS... and they knew that AT LEAST as early as 1989
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you are a better person than me if you replied with anything other than "learn to hide it better." im afraid the most maturity i'd be able to muster would just involve the block button.
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Measles, mumps, rubella, roseola, hand-foot-mouth disease, chickenpox, and "mono" are often refered to as "innocent childhood illnesses," but there's one little detail you probably didnt know - every one of those viruses infects t cells 🧵
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"proud boyfriend of an ice agent" in rainbow letters would trigger them even worse though 😂
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SARS-CoV-2 has killed more people EVERY MONTH than the September 11, 2001 attacks - for literally years now. If you aren't covering your pie hole in public, sit down and shut the fuck up about remembering those who died because you are the one killing people now.
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"We are in the midst of the longest, saddest, most excruciating 'I told you so' in the history of the world"
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There's been a lot of posts lately, remembering a weirdly romanticized version of the political activism spurred by the AIDS crisis in the 1980s and 1990s. Everyone likes to talk about Larry Kramer and ACT UP, but how many actually remember the rest of the story? 🧵
ALT banner: aids - we need research not hysteria
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screenshots of the article linked together in a pdf 👍
docs.google.com/document/d/1…
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dafuq???
picking up things from amazon locker.
went in store for a bottle of water.
clerk was masked
customer ahead of me was masked
customer entering as i left was masked
I AM IN TEXAS Y'ALL THIS IS WEIRD
(but in a really amazing way)
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this thread is a collection of interesting published research that no one wants to talk about
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Thats exactly what i hear all over again when i see people trying to find any commonality between people with long covid other than the fucking obvious one that is right there in the name: covid. thats it, the answer is covid, its not even a mystery this time. 🧵
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My dr masks 100% of the time in patient areas whether a patient is there or not. He hands earloop black kn95's to any who try to enter exam area beyond waiting area without one and explains as a physician why its necessary for their safety and others. We need more like him.
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its literally what we feed our military - and what is given to civilians here after natural disasters. And they are all expired - the manufacturer puts the date for liability issues, but they are good and used by military for 25 years. There are a lot of things screwed up about the air drops - like that it took so long and dropped so little, for starters. Im in no way defending that. But one thing they did right was supplying the same rations given to our troops & civilians. I just really hope given that the 2 major religions in the region forbid pork, that they dropped the vegan ones. Because all the meat ones are pork based 🤦🏼♀️
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long covid is caused by SARS-CoV-2. just like aids is caused by hiv. they are both caused by a fucking virus - not your genes or your lifestyle or your luck. all these other commonalities may increase one's risk of being exposed, but they are not the cause. 🧵
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I watched my best friend die of AIDS in the eighties. Or more to the point, watched the opportunistic infections slowly kill her. The very same opportunistic infections that are slowly killing me now. The only difference is the virus that caused our illnesses. So while folks debate the politics, I am calling for all sides to remember that this affects real people.
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A choice was made to demonstrate using the blurred image of a child's face. That was intentional, and speaks to intended market & use, because literally any other blurred image including an adult's face, a landscape, etc., could have shown the ability. But you chose creepy.
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I dunno it kinda appears to me that you thought your daughter was lying, you were proven wrong, and now that she isn't here to respond you still insist on pretending you were right. On her account, to her friends who are also grieving, that believe her. What is even wrong with you? Let her rest in peace, since you didnt let her live that way.
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omfg i have to be dreaming or something
dominos employee brought my after hours takeout to the door... wearing a mask
and... and... and...
i pointed and mine and said 'thank u, so few do'
and they said
"i'm tired of getting covid"
😮🥹
like wtf? is this even possible?
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I would just like to remind everyone who is so excited about reactivated EBV and CMV that those were the most common early presentations of people living with AIDS in the eighties.
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this is completely false. we don't think the science abandoned us; we know that society abandoned science - and us. this derogatory headline is actually proof of it. read on to see why - and if you are able, request community note on the OP below 🧵
COVID-conscious people don't think that they've abandoned science; they’ve come to think that science has abandoned them. @danengber reports: theatlantic.com/health/archi…
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I've written ad nauseum about my journey thru this long covid nightmare for over five years now. You're probably all sick of hearing about it by now, but I figure you stick around because you think I'll find the answers somehow. And maybe I did, but you ain't gonna like it. 🧵
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long covid isn't caused by latent viral infections, hereditary illnesses, age, weight, comorbidities, etc. Just like aids isn't caused by being gay, or injecting drugs, or being from haiti (why the fuck is haitian bashing popular again also btw?) 🧵
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starting with, had you read it, you wouldnt have a knee jerk reaction against folks who try to point out the similarities in pathology and outcomes
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its real, the young man is still alive, and has continued the mission of feeding the homeless monthly
gofund.me/15dfdae3
people.com/human-interest/13…
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i was 17 when i realized (a) most kids dont need laughing gas every visit (b) most kids dont get yeast infections every time they go to the dentist
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Hear me out. Everything is allergies now, right? Well, in a way, the deniers are actually correct. Most people are allergic to viruses, and can become very ill from contact with them. We should use this technicality to its fullest potential. 🧵
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its not that they dont believe you, its that neurotypical people have a pathogenic ability to pretend not to believe things that challenge their worldview
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What if one day we realize immunology, virology, and oncology are actually the same field?
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wait so now that they told everyone the pandemic is over they're actually going to address the pandemic?
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but also, you'd realize that using the name of a virus and the illness it causes interchangeably is a bad idea that only sows confusion
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hiv cannot be transmitted thru casual contact. SARS-CoV-2 is primarily transmitted thru casual contact.
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both kill t cells and cause immune deficiency, but there are treatments for hiv to prevent disease progression AND transmission, allowing those living with it to lead full lives
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lolz, nice.
my sister asked the dreaded "why" question in response to a famous scene from kindergarten cop .... but in epic kid fashion, it was 24 hours later in the middle of sunday service....
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"the hardest thing about living with this is never knowing how you will feel from one day to the next"
"i've had a fever for 128 days but they don't know whats causing it"
"i sleep 19 hours a day and i'm still so tired all the time"
i regret that i dont remember their names 🥺
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So if a passenger is allergic to SARS-CoV-2, does that mean the airline has to ensure it isn't served on the flight? Because that would be amazing.
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i have a really bad feeling about year five for those of us that got sick early in the pandemic. because what im seeing in so many posts right now looks a helluva lot like a story i saw once before, and it didnt fucking end well
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hiv is recognized by the social security administration for disability purposes. SARS-CoV-2 is not, even though many of the effects of chronic infection are indistinguishable without treatment.
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hundreds of people on a local fb page blaming all their ailments on "pollen" so i left this note (intentionally worded to not come across as covid preaching, im in texas, they wont listen if i do that... and this just might get em to mask up)
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This feels like a good day to remind folks mononucleosis can be caused by either ebstein barre virus or cytomegalovirus. thats right, two different viruses cause the same illness. hmm why is that relevant? 😏
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remember when everyone was trying to say ebv reactivation was the cause of long covid?
i have some really fucking bad news for you. ebv reactivation was at one time considered as a cause of aids also.
in both cases, its an outcome rather than the cause. 🧵
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Luc Montagnier was a Nobel Prize recipient for his work in isolating HIV, but early in the pandemic when he demonstrated genetic sequences of HIV appearing in the genome of SARS-CoV-2 he was forced to withdraw his paper under political pressure. 🧵
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2 injections per year can completely prevent infection & transmision of hiv.
the best covid jabs only reduce the risk of hospitalization, and protection wanes after a few months.
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you won the internet. or at least twitter. congrats!
(our benevolent but evil overlord occasionally bestows the coveted blue check to those that put enough green notes in his wallet - and your epic post seems to have done that. u should get extra credit for a thesis this popular)
⭐
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Imagine getting a virus you were told was a simple respiratory virus - "like the common cold" & "mild for most people," and five yeas later you are still sick, still disabled, and dying in a tent from so-called "AIDS defining infections." That is my reality. 🧵
oh boy is the world in for a shocker when the final outcome becomes apparent. won't exactly have to imagine then.
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apparently there is suspicion he may have drugged and abused his daughter also
theguardian.com/world/2024/n…
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when i was in 5th grade i was allowed to take the commuter train with friends, from houston to galveston, and roam the island for the day and come home that evening. it was cheap too, like $3 each way lol
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Statement to @NIH RECOVER-TLC
Hello, my name is Froglet Taylor and I am a 44 year old female from Houston, Texas. I have had Long Covid for 4.5 years and am very disturbed that the majority of research to this point has been repetitive observational studies as millions of people like myself continue to get sicker with each passing day & are unable to access financial support because there is no point of care test for long covid.
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so now that Kaposi's Sarcoma and extra-pulmonary tuberculosis have entered the chat, do we want to rethink that denial of any similarity between AIDS and Long Covid? Because there is notably not a corresponding uptick in AIDS dx to explain this shit...
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The pandemic is not over. An estimated 1 in 30 have SARS-coV-2 in the united states right now, and half of them do not know it yet - but are still contagious.
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while both can be passed from parent to child during pregnancy, this can be prevented in hiv by treating the pregnant person with medications that are safe to take during pregnancy. No such thing exists for SARS-CoV-2.
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dysautonomia, chronic fatigue syndrome, mental health issues, high cholesterol, fungal and bacterial infections, other latent viral infections such as CMV, VZV, and HHV6, etc., have likewise been pointed to as causes of long covid because they're commonly seen in patients 🧵
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you damn sure wouldn't believe that diet, exercise, pacing, or supplements could get us out of this mess
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thats because SARS-CoV-2 is transmitted thru the air when people cough, sneeze, talk, sing, or even just breath.
HIV cannot be transmitted thru the air, or thru saliva, or any other way except direct blood to blood contact, unprotected sex, or breast milk (and u=u prevents these)
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SARS-CoV-2 infects cells in your bone marrow.
so does HIV, but there are treatments for that virus.
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I have some more really fucking bad news for you. All of those things I mentioned in the previous tweet? Are also common findings in people living with HIV (particularly in advanced stages, or those whose initiation of antivirals was delayed) 🧵
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SARS-CoV-2 infects cells in your brain.
so does HIV, but there are treatments for that virus.
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I developed persistent cd4 lymphocytopenia following SARS-CoV-2 infection (before vaccines existed) & I'm homeless as a result of long covid. I know my story makes people uncomfortable - thats why I share it. If you find this info helpful, please help me keep fighting.
ALT froglet taylor fighting covid: one long day at a time disabled by long covid in 2029, now homeless & immune compromised. 4.5 years, still no approved treatments or government assistance. i need your help to keep surviving. thank you ko-fi.com/froglet80 cashapp $froglet80 venmo/paypal @froglet80
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In case you missed the point let me make this really clear.
HIV is nothing to actually fear at all anymore.
Its not good thing to live with & a long way still to go in that regard.
But its very hard to get - and you can actually LIVE with it.
not true of SARS-CoV-2
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💬There’s no viral load test for SARS2.
There is for HIV. With treatment you could have nearly undetectable viral loads and live a normal life.💬
((thank you @erincandy))
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Violet Affleck, you don't know me, I am just a homeless long covid patient in Houston impatiently waiting for help, but I want you to know how much your speech meant to me. You are one of very few in this nation that bothers to care about anyone, least of all folks like me. Thank you so much for your courage.
*** KEEP THIS GOING #LongCovid #StillMasking
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im unhoused and way over in houston but if any fire victims end up evacuated down this way, dm me, i'll feed 'em a meal, its all i have to offer. *bleep* the orange man.
(offer open to any disaster victims always)
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when SARS-CoV-2 results in a t cell count of 84, and pneumocystis pneumonia, and cmv & candidiasis.... the cdc just ignores it. even though we know the cause.
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Most of y'all have also never watched any documentaries with interviews of patients in those early years and it shows even more
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when HIV did that, even before we knew of the virus, the cdc wrote a whole report on it and the whole world paid attention.
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i am not in any way suggesting this could ever be justified - but am curious as to the context of their reasoning for doing this ....
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Stacy Torres, a professor for @UCSF School of Nursing, thinks its a gift for immunocompromised people to get infected for Christmas. How utterly disgraceful for her profession and her institution.
archive.ph/2024.12.25-160957…
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