Recognized globally, the CF Foundation has led the way in the fight against cystic fibrosis, fueling extraordinary medical and scientific progress.
Headquarters in Bethesda, MD
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Stay connected to the Cystic Fibrosis Foundation! Follow along in our relentless pursuit of a cure for CF on social media and email.
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There's currently no cure for #cysticfibrosis, but we're working to change that. Stars from @FiveFeetApart, including @colesprouse and Haley Lu Richardson, share how you can join the fight against CF. #CFawareness
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The approval of the triple-combination modulator represents a truly transformational milestone in the fight against #cysticfibrosis. We could not be more excited about this pivotal moment in the history of CF.
FDA has approved a breakthrough triple combination therapy for patients 12 & older with the most common cystic fibrosis mutation, estimated at 90% of the cystic fibrosis patient population. go.usa.gov/xp3Cg
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Congrats to @God_Son80 for being selected as the @Browns 2019 Walter Payton Man of the Year nominee! Whether he’s on the field wearing custom cleats, or off the field hosting a fundraiser, we’re grateful for his efforts to add tomorrows for the CF community. #WPMOYChallengeLandry
We’re proud to announce Jarvis Landry as our Walter Payton Man of the Year nominee!
More: brow.nz/GrTGlp
#WPMOYChallenge | @God_Son80 | @Nationwide
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We couldn’t be more grateful for the support of @Browns wide receiver @God_Son80 on and off the field. Now let’s show him our support in the Walter Payton NFL Man of the Year challenge!
Retweet this post with #WPMOYChallenge + Landry. Every RT is another vote!
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Annie McMahon, a 22-year-old living with #cysticfibrosis, talked on the phone with @taylorswift13 following a viral video of a dance party in her hospital room. on.cff.org/2WKLUUF
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“This is a moment to celebrate and to reflect on how working together, and against great odds, we have effectively transformed a genetic disease in a single generation, making #cysticfibrosis the greatest story in medicine" - Dr. Michael Boyle on.cff.org/33T80Im
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Congratulations to @colesprouse for winning the Drama Movie Star of 2019 at the #PCAs for his role in @FiveFeetApart! Watch his acceptance speech to hear his take on how the movie raised #CFawareness.
Once Upon a Time at the #PCAs, Cole Sprouse had some wise words for Brad and Leo.
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Today, the U.S. FDA approved the triple-combination modulator elexacaftor/ivacaftor/tezacaftor (Trikafta™) for people with #cysticfibrosis 12 years and older who have at least one F508del mutation. on.cff.org/31vq0a9
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It’s the last week to show your support of @God_Son80 in the #WPMOYChallenge!
RT this post to cast your vote for #WPMOYChallenge + Landry.
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Thank you, @tae15adams, for your support on the field this weekend and helping us raise #CFawareness! #MyCauseMyCleats
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Jake! What an incredible day. We are so grateful. Please know we will not rest until CF stands for Cure Found. 💜
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With $500,000,000 in funding, the Foundation is setting out the Path to a Cure – an ambitious research agenda – and challenging industry to develop treatments for the underlying cause of disease for all people with #cysticfibrosis. on.cff.org/2Jyk3Dk
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Thank you to @OneRepublic for raising awareness for #cysticfibrosis in their new video for #ILived. Check it out! ow.ly/BVUGx
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Today we celebrate the 1️⃣ year anniversary of the approval of Trikafta, a CFTR modulator for people with cystic fibrosis ages 12 and older with at least one F508del mutation.
As we celebrate, let's look back on the reflections of the CF community from the last year. 🧵
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We're grateful to have the support of @RamsNFL player Matthew Orzech for the @NFL's #MyCauseMyCleats! #CFAwareness
ALT A light-skinned man wearing a blue LA Rams t-shirt and a backward baseball cap smiles at the camera as he holds up two custom-designed cleats in his hands. In his right hand is a purple cleat with painted pink lungs and a purple awareness ribbon. In his left hand is a teal cleat that reads, "Cystic Fibrosis Foundation. The bottom of the graphic reads, "42, Matthew Orzech, Cystic Fibrosis Foundation, My Cause My Cleats.
ALT Images shows two cleats, on the left is a purple cleat with painted pink lungs and a purple awareness ribbon. On the right is a teal cleat that reads, "Cystic Fibrosis Foundation.
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#Cysticfibrosis is a rare genetic disease found in about 30,000 people in the U.S. RT to help raise #CFawareness.
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The @US_FDA approved Trikafta for children with CF ages 2-5 years with at least one copy of the F508del mutation or one copy of certain mutations. With this approval, more than 900 children will have access to a CFTR modulator for the first time. cff.org/news/2023-04/trikaft…
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According to 2023 Patient Registry data, the median predicted age of survival for people with cystic fibrosis born between 2019-2023 is 61. Let’s break down what this number means.
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Congratulations to Ethan Payne, a teen living with #cysticfibrosis, who’s going to Hollywood! #AmericanIdol
#EthanPayne came to one of my shows and outshined me, now he came to @AmericanIdol and did it again. #AmericanIdol #TheNextIdol
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Congratulations to Lauren Luteran, a 19-year-old contemporary dancer living with #cysticfibrosis, who received a ticket to the academy after her performance last night on @DANCEonFOX! 💃
Absolutely stunning. 🤩 #SYTYCD nitter.app/DANCEonFOX/status/1140…
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The @US_FDA has approved the use of Trikafta for children with CF ages 6 - 11 who have at least one copy of the F508del mutation or one copy of certain mutations. With this approval, about 1,500 children are eligible for a modulator for the first time. on.cff.org/2RD5gOV
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The @US_FDA has approved a new drug that treats the underlying cause of #cysticfibrosis, Symdeko (tezacaftor/ivacaftor and ivacaftor). More to come. #CFresearch
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An analysis of #cysticfibrosis patient registry data found a 10-year difference in lifespan btw the U.S. & Canada: on.cff.org/2mDnegk
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We’re proud to partner w/@iamjrbourne on the #Howl4aCure campaign. cff.org/howl4acure/ Send us your best howl!
Share your best howl with #Howl4ACure and challenge 3 friends! Let's spread awareness about Cystic Fibrosis <3
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“CF was once a disease without hope. CF is not only the most amazing story in medicine, but because of your work, hope now abounds. We need to finish and finishing means curing #cysticfibrosis for everyone. We won’t leave anyone behind.” - Preston W. Campbell, III, MD #NACFC
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Congratulations to Brianna Collichio, a 15-year-old singer with cystic fibrosis, who received a golden ticket on #AmericanIdol last night! on.cff.org/3tmSIbS
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Hi, Kim! If you like the movie, we'd encourage you to check out our website to learn more about the realities of life with #cysticfibrosis. on.cff.org/fivefeetapart
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“The number of people with CF who need a lung transplant continues to decrease with only 32 lung transplants for people with CF in 2022 and very few on the wait list. Prior to 2019, about 250 individuals received a lung transplant each year on average.” – Whitney Brown, MD
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Vertex announced today that it will seek @US_FDA approval for its CFTR modulator VX-445 combined with tezacaftor/ivacaftor in the third quarter.
If approved, the drug could eventually benefit more than 90% of people with #cysticfibrosis. #CFresearch on.cff.org/30Wrtan
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May is Cystic Fibrosis Awareness Month! Follow along all this month to learn how you can get involved and make a difference for everyone living with #cysticfibrosis. #CFawareness
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Three years ago today, Trikafta®, a CFTR modulator that treats the underlying cause of CF, was approved. Since then, we've seen incredible progress, including an increase in pregnancies reported in the CF Patient Registry, fewer pulmonary exacerbations, and so much more.
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We hope you spent the weekend practicing your #Howl4ACure, too. Here’s ours! Learn more: cff.org/howl4acure
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Vertex announced positive Phase 3 clinical trial data for Trikafta in children 6 - 11 years old with #cysticfibrosis. Based on the results, Vertex plans to submit a supplemental New Drug Application to the @US_FDA in the fourth quarter of 2020. #CFresearch on.cff.org/339iTqI
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Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. #CFAwareness
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May is Cystic Fibrosis Awareness Month!
ALT A graphic reads, "May is Cystic Fibrosis Awareness Month."
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Today, we celebrate all nurses who care for people with #cysticfibrosis. Thank you for all that you do to add tomorrows! #NursesDay
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Thank you, @JimmyKimmel, for highlighting why #GrahamCassidy does not protect people with pre-existing conditions. #ProtectPatientsNow
If you too are disappointed in Sen @BillCassidy #GrahamCassidy let them know it - call (202) 224-3121
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Today, Vertex released positive results from two ongoing, late-stage clinical trials for the potential VX-445 triple combination therapy. #CFresearch on.cff.org/2ECh0XB
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Exciting news for the #cysticfibrosis community! Today, the @US_FDA approved lumacaftor/ivacaftor (Orkambi) for children living with CF ages 2 to 5 who have two copies of the most common CF gene mutation, F508del. #CFresearch on.cff.org/2MsKkm3
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The Path to a Cure will accelerate treatments for the underlying cause of #cysticfibrosis for everyone with the disease. Follow the path to learn what that could look like for you or your loved one with CF.
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May is Cystic Fibrosis Awareness Month!
This is your month to shout a little louder about your CF story, and educate others about the realities of life with a rare disease. #CFAwareness
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May is Cystic Fibrosis Awareness Month!
ALT A text graphic reads, "May is Cystic Fibrosis Awareness Month."
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"We anticipate potential approval of a triple-combination therapy for people with #cysticfibrosis in 2020. This approval could over time lead to more than 90% of people with CF having highly effective treatments for the underlying cause of their disease." -Mike Boyle #CFFVLC
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Happy birthday to Dr. Dorothy Hansine Andersen! Dr. Andersen was the first person to identify #cysticfibrosis in 1938. #CFAwarenessMonth
ALT A old, black and white photo shows a light-skinned woman wearing a white lab coat, staring into the camera.
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May is CF Awareness Month! Learn how you can make a difference for the #cysticfibrosis community all month long. #CFawareness on.cff.org/2w7vopQ
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Hear about @iamjrbourne’s personal connection to cystic fibrosis, then help us #Howl4aCure: spr.ly/6010B4vgk
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Breana Shroeder, a teen w/ CF, is one of the youngest surfers to compete at world championships for tandem surfing: spr.ly/6014BgOTr
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Today, we’re thrilled to announce that Steven Rowe, MD, will be the Foundation’s next chief scientific officer.
ALT A light-skinned bald man wearing a white lab coat and striped button-down shirt smiles at the camera.
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Triple combination for #cysticfibrosis submitted to @US_FDA for review. Vertex is seeking eight-month priority review. #CFresearch on.cff.org/2XU0HSp
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Happy birthday to Dorothy Andersen, MD! Dr. Andersen was the first person to identify #cysticfibrosis in 1938, changing the lives of thousands of people in the process.
ALT A light-skinned woman wearing a white lab coat sits and holds papers in her hand.
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Ten years ago today, the @US_FDA approved Kalydeco, the first drug to treat the underlying cause of cystic fibrosis. It represented a major advance in our search for a cure for CF.
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Getting a lung transplant is an incredibly complicated procedure and requires a large team to make sure the operation is successful. On #TransplantNursesDay, we thank all of the amazing transplant nurses who provide care to people with #cysticfibrosis every day.
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Promising Phase 2 clinical trial results released for a potential mucus clearance drug from Spyryx Biosciences Inc. People living with #cysticfibrosis who inhaled the drug showed a 5.2% increase in FEV1 after 28 days. #CFresearch on.cff.org/2HtdNsC
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BREAKING: @US_FDA has approved the lumacaftor/ivacaftor combination drug, Orkambi: ow.ly/P68Pa
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Do you find it hard to explain #cysticfibrosis to your family and friends? Watch and share this video to see how lungs normally work, and how CF can affect the lungs over time. #CFawareness
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Give your best howl 4 a chance to win a 1-on-1 chat w/ me on 9/7 on
@Bidchat 4 #CFF!Tweet vid and tag it #Howl4ACure
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The Foundation urges the Biden administration to consider top public health priorities for the #cysticfibrosis community, including early access to #COVID19 vaccines, telehealth, and paid leave, when developing their policy priorities. #CFadvocacy on.cff.org/presidentelectlet…
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What better way to express your ❤️ than by being an organ donor? Watch Jennifer, an adult living with #cysticfibrosis, take her first breath following a double-lung transplant, and register to #DonateLife today: on.cff.org/2EqQYZR #NationalDonorDay
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What an incredible two weeks for people living with #cysticfibrosis!
People with cystic fibrosis in Northern Ireland will get access #LifeSavingDrugsNow with deal on its way to fund Orkambi and Symkevi. More details as we get them.
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Vertex selected 2 potential next-generation CFTR modulators, VX-659 and VX-445, to advance to Phase 3 clinical trials – an important next step in bringing modulator treatments to about 90% of people with #cysticfibrosis. on.cff.org/2Epemnj #CFresearch
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Learn about @iamjrbourne’s personal connection to cystic fibrosis, then help us #Howl4aCure: spr.ly/6012B4Fu2
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We’re thrilled to announce one of our new Impact Grant recipients: Terry Wright, founder of Raising Cystic Fibrosis Engagement in the African American Community.
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Congratulations @CFTrust, and thank you for your tireless fight for people with #cysticfibrosis to access these critical drugs!
Today's news on #LifeSavingDrugsNow has been four years in the making. Find out more about how people with #cysticfibrosis in England will benefit from access to #Orkambi & #Symkevi as we continue to fight for those in Wales & Northern Ireland cysticfibrosis.org.uk/news/a…
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Have we heard your #Howl4ACure yet? It's not too late! Learn more: spr.ly/6019BAKAF
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Thanks to advances in research and care, the proportion of adults with cystic fibrosis — at 62% — has surpassed that of children. While we’re encouraged by these trends, there is more to be done to meet the changing needs of the CF community.
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How is someone diagnosed with CF? To have CF, a child must inherit 1 copy of a CF gene mutation from each parent.
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“Three patients were safely dosed with 4D-710 gene therapy, and lung samples obtained show the first promising evidence of CFTR trans-gene expression in the lung. These are early safety data, but this is a milestone for CF.” - Deepika Polineni, MD, MPH #NACFC
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Vertex announced that the @US_FDA has accepted application of Trikafta expansion to include children ages 6-11 years old with #cysticfibrosis who have certain mutations. The FDA has said it will make a decision by June 8, 2021. on.cff.org/3ol36h2
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When the Foundation was established in 1955, people with #cysticfibrosis weren't expected to live to attend kindergarten. Today, people with CF are living into their 30s, 40s, and beyond, and achieving milestones of all kinds. #CFawareness
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Did you know? Dorothy Hansine Andersen, an American physician, was the first person to identify #cysticfibrosis. #InternationalWomensDay
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Today, Vertex released positive Phase 3 clinical trial data for VX-659, one of two next-generation, triple combination #cysticfibrosis modulators currently being tested. #CFresearch on.cff.org/2PUp0eV
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Help raise awareness for people living w/ CF in your community. Find your local CF Foundation chapter: spr.ly/6011B4yhD #CFawareness
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"Being Black with cystic fibrosis means being misunderstood. It means being left out because approximately 5 percent of people with CF are Black. It means being an afterthought." on.cff.org/3fqC9oD
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We're attacking #cysticfibrosis from every angle. Just watch to see how our Drug Development Pipeline has changed over the last 20 years! #CFresearch
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Vertex announced it has submitted three supplemental New Drug Applications to the @US_FDA to expand eligibility for Trikafta, Symdeko, and Kalydeco to additional rare CFTR mutations. on.cff.org/3jt4ooi
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Help us support @Browns nominee for the Walter Payton NFL Man of the Year, @God_Son80! The nominee with the most hashtag mentions will receive a $25,000 contribution to their charity of choice.
Every RT is a vote! #WPMOYChallenge + Landry
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We're thrilled to have the support of @MiamiDolphins wide receiver @God_Son80 for the @NFL's #MyCauseMyCleats campaign! #CFawareness
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The Foundation has awarded up to $1.61 million to Eloxx Pharmaceuticals Inc. to conduct an early Phase 2 clinical trial of an investigational drug that could potentially treat people with #cysticfibrosis who have a nonsense mutation. #CFresearch on.cff.org/2l1JJ29
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We did it! 👏 Congress passed a spending bill that increases funding for the @US_FDA and @NIH, sending it to the president’s desk. Thank you to everyone in the #cysticfibrosis community who spoke out to support these agencies that are critical in the fight against CF. #CFadvocacy
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On the blog, @jcahillYCF shares the everyday heroes who inspire him: spr.ly/6013BcB0x
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Positive results announced today from a Phase 3 clinical trial of ivacaftor in children with #cysticfibrosis ages 1 to 2 with 1 of 10 mutations. on.cff.org/2BRy0a4 #CFresearch
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A big round of applause to Lilly Knowles, a 13-year-old living with #cysticfibrosis, who will guest star on an upcoming episode of @NBCNewAmsterdam portraying a teen with CF. 👏 #CFawareness on.cff.org/2NZ5zxc
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New studies show potential of next-gen modulators to treat the underlying cause of CF in ppl w/ 1 F508del mutation: on.cff.org/2tnDyZ6
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When the CF Foundation was established in 1955, there were no treatments for cystic fibrosis. Today, there are more than a dozen new treatments for CF. #CFAwareness
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That’s a wrap on #NACFC 2019! Thank you to everyone for following along. You are making a difference for all people living with #cysticfibrosis. #CFresearch
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Good news for the #cysticfibrosis community: @US_FDA approved ivacaftor (Kalydeco) for children ages 1 to 2 in the U.S. who have at least one mutation that is responsive to ivacaftor. #CFresearch on.cff.org/2PddLtZ
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.@US_FDA expanded the label for Trikafta, Symdeko, and Kalydeco to include people with #cysticfibrosis who have certain rare mutations. on.cff.org/38rXPyq
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J.J. Whicker, a dad to a child with #cysticfibrosis, shares the importance of #Medicaid to his family. on.cff.org/2lEyFHf #CFadvocacy
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Last night, Congress voted to fund #CHIP for the next 6 years. CHIP is vital for children with #cysticfibrosis and we are thankful that they will maintain access to the specialized care and treatments they need. #CFadvocacy
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We’re thrilled to announce that KC White has been elected by the Foundation’s Board of Trustees as its next Board Chair. This marks the first time in our history that the Board will be led by a person with #cysticfibrosis. on.cff.org/KC-White-Next-Cha…
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Fifty years ago, there were no effective treatments for #cysticfibrosis. Today, we're attacking CF from every angle: spr.ly/6010Bc6ym
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People with #cysticfibrosis are living longer than ever before and achieving dreams of all kinds. But we won’t stop until there’s a cure for CF.
Your involvement is critical to our progress. Give today and help make dreams come true: on.cff.org/give
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What an exciting day for the #cysticfibrosis community! Congratulations and thank you to the @cftrust for their tireless fight for access to the triple-combination therapy.
"This will truly save lives", our Chief Executive David Ramsden on today's news for the #cysticfibrosis community.
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Two years ago today, Trikafta®, a highly effective CFTR modulator, was approved by the @US_FDA. Since then, many in the cystic fibrosis community have seen transformative changes to their quality of life.
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.@US_FDA has approved ivacaftor (Kalydeco) for babies as young as 6 months who have 1 of 38 CF mutations. The growing data on early treatment continues to support our belief that starting on modulators at a young age could help slow the progression of CF. on.cff.org/2vvYjAu
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Cystic fibrosis affects more than just the lungs.
CF can cause changes in many parts of the body, including the lungs, pancreas, liver, intestines, sinuses, reproductive system, and sweat glands. #CFAwareness
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Thank you, @Shaq_Lawson90, for your support on the field this weekend! #MyCauseMyCleats #CFawareness
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