ALS/MND is living with me. Former Rugby Player for Gloucester and Leicester Tigers. Charlton Ath fan. No particular order 🙂 #KeepMovingForward #cafc
Cheltenham, England
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I want to say Thank You to everyone for all your messages of support and generosity. It gives me and my family a huge amount of strength in a time of sadness for us. I will meet this challenge head on. Ultimately I can’t win but I will fight with everything. Hope is not lost.
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I may look like a call centre operator but this week has been one where I've taken steps to 'bank my voice'. It is crucial for people with MND, as speech becomes difficult I have a tool to communicate that sounds like me! I hope that it’s a while before I use it 😅
#mnd
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Thank you Rob. RIP ❤️
You inspired so many people with and without MND alongside your beautiful family and friends.
Say hello to the big giraffe x
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It has been a year to the day since I was diagnosed with MND. I often write little poems, here’s one to mark one year called ‘a year has passed since I was told’. It’s shit but I prefer it to posting a video 😁. Cheers and have a good day.
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5 years married. 12 years together. Happy Anniversary to my beautiful wife. Facing our biggest challenge together, you’re kindness and support is limitless and you give me strength everyday being beside me. ♥️
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Great to see Kev and the team this morning! They really are remarkable people with ginormous spirit. I think I speak for everyone when I say we are all so grateful for everything they do for the MND community. #7in7in7
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Two years on…
Two years ago today I was diagnosed with MND. As far as statistics are concerned, I had a 50% chance of living up to this point but I am still here and despite the complete decline in my physical body, I am pleased to be here. I wrote a poem last year to mark the first year after my diagnosis and so I thought I would do the same thing this year. I will keep going every year I can.
P.S. It’s coming home 😁
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Thanks for showing us the way Doddie. A giant of a man in character and presence. Rest in peace.
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A very special day for me and my family at Kingsholm. I want to say a huge thank you to everyone for your support.
To the rugby community, you really are a special group. I will continue to fight this disease with all the strength I can as well as keep pushing awareness for MND.
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Tough few days - my legs are starting to give up on me. I’ve fallen over a few times over the last 12 months but Wednesday was a big one. A few broken ribs and a punctured lung. Still, not a bad weekend of sport to be sat on my arse!!
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It was good to get out and see my daughter play football. Seeing as I walk like a man made of tissue paper, the mobility scooter gets me about and I get the best seat in the house 😆
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Really enjoyed getting back on my feet and back in a gym, which I haven't done in over a year.
Thank you to the legends Rob and Sarah @ Apex Neuro for looking after me with real care and empathy whilst working hard to push me to expand my limits.
In the video I am doing leg extension at 70kg and hip thrusters with 40kg plus whatever that bar adds. I am also attached to a machine that supplies direct current to nerves, which supports the muscle group I am working in the hope of engaging some of the connections I have lost with MND. ✌🏼
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Absolutely devastated for Lewis, Annie and the boys.
We will be here for you as and when you need ❤️
Please support Lewis and Annie here bit.ly/4mP5tqU
The Leicester Tigers family sends its heartfelt support to Lewis Moody, who has announced he has been diagnosed with Motor Neurone Disease.
leicestertigers.com/news/tig…
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I also want to add a thank you to @JillADouglas and @MNDoddie5 who have been a huge support. I’d also like to thank @mndassoc. Both are working to fight this disease for me and all my fellow battlers of MND as well as our loved ones.
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✨A Million Thank Yous✨
Thank you Billy for putting your body on the line for me and for MND. People don't see what else you and G do for us but now they see what we know. You're a great man with a massive heart.
Thank you to everyone who turned out to see the team off and welcome them Holm.
Thank you to the team of friends that helped keep Billy going and safe on the road.
Thank you to everyone who saw our story, sent messages, cheered from the road. Who came to Leicester and Twickenham.
Last but not least, THANK YOU for donating to our cause. We live in difficult times and it's hard to ask for money but YOU have given so generously and we are extremely grateful you helped us smash our target and it continues to go beyond.
Ed
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I was never really big on celebrating my birthday but life is different now.
Every year, every month, every week, every day I get to spend with these special people in my life is a gift worth celebrating ❤️😍
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Thank you to the @BBCBreakfast team for sharing the other side to our battle with MND. This disease doesn’t just affect ourselves but impacts hugely on friends and family. ❤️
Claire Ryan
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Wow, what an amazing day for me and my family. A huge thanks to everyone @LeicesterTigers for the way you looked after us and made it very special. Well done @gloucesterrugby for a heroic performance and taking the cup for the first time. I am incredibly grateful to all the support and encouragement the clubs and supporters show us ❤️💚
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I’m incredibly proud and emotional to see these two great clubs battle it out for the ‘Slater Cup’.
I hope it will be a game my children and family can watch for years to come. It will also be an important way to raise awareness for all of us affected by this awful disease.
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Wow! Incredible welcome at a special place for me and my family. Thank you everyone for your support and encouragement. Amazing to see two great clubs coming together. Thank you @LeicesterTigers. #MND #useitbeforeyouloseit
A heroic effort on day 1. 👏
A wonderful reception for @edslater and the team at @LeicesterTigers. 🙌
#4Ed
👉 bit.ly/Cycle4Ed
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Sad news to hear of Norm Hewitt passing with MND. Always enjoyed hearing the story behind his stand off with my old boss Richard Cockerill, but also reading what a good man he was.
Thoughts are with Norm's family and friends. ❤️🙏
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Incredible atmosphere to match a brilliant performance last night. I used to love playing at Kingsholm on a Friday night under lights. Special club and fans. Merry Christmas everyone!
#rugby #gallagherprem #premiershiprugby #gloucester #MND
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Thank you to @alastaireykyn and the team for coming over for a chat.
A tough watch for me, in my head my speech is very fluid 😆 unfortunately you can see the impact MND can have in such a short amount of time.
Let’s get after this thing! 👍🏻
Rugby on TNT Sports
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What a special place, with special people. Thank you everyone for your messages, donations and support. It was physically gruelling, but I’m so proud of the team, an incredible group of people. The support drove us all the way! #useitbeforeyouloseit
Holm. ❤️
What an unbelievable welcome for @edslater and the team after 350 miles over three days.
#4Ed
Donate here 👉 bit.ly/Cycle4Ed
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Thanks @CAFCofficial for letting me see my three children on The Valley pitch and watching my son run out with the team. Thanks to Bob, Chanel and @TraceyLeaburn for looking after us all and most importantly, a massive 3 points 🔥 #CAFC
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#WorldMNDAwarenessDay
We have to change the story of MND.
Today is about shining a light on all the people and families affected by Motor Neurone Disease. It is currently untreatable, and considered a terminal illness, the stats will tell you that over half of people die within 2 years of diagnosis. This disease strips you of absolutely everything, and rewrites your story for you in the worst imaginable way.
We have to find a way to treat it, and improve the lives of everyone stories it’s ruined.
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Great day with the kids at Fistral Beach. First time using a beach wheelchair, which made it all easier but biggest help were the number of people who were happy to help get me up and down the ramp. Thank you good people 🙏❤️
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Not only has EPCR turned the European Cup in to half the tournament it used to be, they have made it harder to watch for everyone. Well done.
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Looking forward to my kids first game at The Valley tomorrow. I got absolutely rinsed in the club shop by them but needs must 😆 #cafc @CAFCofficial
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Great to catch up with @Rob7Burrow & his wonderful family today. Loved seeing the kids together and most importantly we celebrated the women by our side.
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The Northern Powerhouse 🥹. Thank you.
‘Our country cares’
At the end of Kevin Sinfield’s #ultra7in7 he’s raised more than £1.5m for #MND
A hero for modern times recognised at the Rugby League World Cup final
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Congratulations to Saracens. Not a great way to finish the season but it isn’t the end for this team. Proud of everything we’ve achieved this year and thank you to all the supporters, been a pleasure to play in front of you all. Here’s to next year 🍻
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I forgot to add that what I see is an improvement 😉 but seriously, I am not alone with how this disease makes you feel. Thanks to everyone at @BBCBreakfast for having me and Billy on yesterday, your continued support of our community is so important to us all.
'I see myself in the mirror, photos and videos and I don't recognise myself but I'm the same inside'
Former Gloucester and Leicester rugby union star Ed Slater spoke to #BBCBreakfast about living with MND as his friend Billy Twelvetrees prepares to cycle 350 miles in 24 hours
@edslater @Billy_12trees
bbc.co.uk/sport
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Always proud to wear the Gloucester shirt. A tough one to swallow tonight but I wouldn’t want to be in any other changing room than ours. We’ll dust ourselves down and go again. 💪🏼
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Thanks for the kind words @andNickMullins . So grateful to everyone for their support and I am laughing with Billy about whether the kids were going to keep walking all the way out the ground 😆
A special moment 🥲
@edslater watches on as his children cross the pitch with the Slater Cup 👏
🎥 @rugbyontnt
#GallagherPrem | #LEIvGLO
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Hi everyone. I’ve had a few private messages asking me if this means I now go back to Leicester...
I can confirm I’m not going back the other way just to clear that up!! Welcome back to Gloucester @J0nnyMay #GlawsFamily
That's right, @J0nnyMay is #ComingHolm 🙌
How about that, #GlawsFamily? 🍒
Read all about it 👇
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He won’t want a big fuss but this bloke is granite. Someone who went above and beyond in the name of Leicester Tigers. A great friend and teammate.
Tom Youngs has confirmed his retirement from professional rugby.
The 35-year-old retires after making 215 appearances for Leicester Tigers, as well as gaining 28 Test caps for England and three for the British & Irish Lions.
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Another difficult result to take, regardless of agreement or disagreement on the decisions made, we have to look at ourselves as players first. Still a long way to go and plenty of games left, this group will come good and we will prove some people wrong. Stick with us. Thanks.
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It is #GlobalMNDAwarenessDay and I sat down with my former teammate and good friend @markatkinson_ to discuss my life with MND. It has also been close to 1 year since I was diagnosed, life has changed considerably.
We need to keep banging the drum!
Gloucester Rugby 🍒
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I’m really excited to bring this game to the public. Just over a year ago, Rob Burrow and I discussed the idea of a cross code rugby game. Sadly Rob won’t be here to see it come to fruition but he is at the forefront of why we are doing this and we are all proud to represent him at his beloved @leedsrhinos 🏟️
With the help of everyone at Leeds, @myname5doddie and @4edfundraising we bring you the first 745 Cross Code Game @the_745game in aid of MND. ❤️
Ed x
@ed_slater
🎟️ Tickets available now at : tickets.therhinos.co.uk
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The support this rugby club has shown me and the family has blown us away. Another reason why we can never forget how important grassroots rugby and the community game is on so many levels!
Thank you @officialmkrufc ❤️
📰 Milton Keynes RUFC have raised nearly £10,000 for the #4Ed campaign, which is fundraising for @edslater.
Ed started playing rugby at the club as a youngster and went on to make over 200 appearances for @LeicesterTigers and @gloucesterrugby 🏉
👏 @officialmkrufc
Read more ⬇️
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Freddie just deselected himself from the 745 game...
You can join the action though!
Tickets going fast, get yours now.
📅 9th November - Kingsholm Stadium, Gloucester
🎟️ 745game.org
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What an incredible day. Congratulations to @charris_13 on 100 appearances for @gloucesterrugby . A brilliant player and a even better teammate.
Thank you to all the supporters for raising an incredible amount which helps us to provide grants to so many people living with MND.
Lastly, what a great game of rugby backed by a special atmosphere ❤️
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I know he’s not on twitter but it was great to see Willi Heinz make his debut and show everyone just how good he is...and also give hope to all us 30+ year old players that age shouldn’t be a barrier 👴🏻 🤣
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Better late than never. Huge result for this squad and always special to play in the @ChampionsCup. For those doubters who were making it clear what they thought when we were behind the posts. That win is for you, cheers.
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Great to get out with this crew for Christmas Eve ✨
Mulled wine, mince pies, sausage rolls and shirts off 🤣
Merry Christmas x
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Not the end Gloucester wanted but sometimes other things are more important. Great to see Manu and good luck to Sale in the play-offs and a brilliant reception for Billy in his last game for Gloucester. A real example of someone who puts everything into the badge.
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Thank you to Billy, it’s an incredible gesture from a great man. I wasn’t sure about this because he has been such a huge servant to rugby and Gloucester but he insisted and I respect all he stands for. He deserves a brilliant day and I’m grateful to be there alongside him.
Billy Twelvetrees' testimonial game will support the 4Ed campaign
The Gloucester favourite is dedicating his testimonial fixture to the 4Ed campaign - in addition to charities Pied Piper Appeal and Winston’s Wish.
🗓 Saturday 3 September KO 3pm
🎟 bit.ly/3PGmUJE
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Gloucester fans have waited for a performance like that for a while. Well done to all the lads that was great fight to win 👏👏
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‘Days not weeks’ - well done BBC breakfast for nailing them down.
'I'm expecting to announce something very, very shortly'
Health Secretary Stephen Barclay told #BBCBreakfast he will reveal 'within days' what will happen to £50m of funding for motor neurone disease #MND
bbc.co.uk/news/uk-england-le…
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So proud of Jo ❤️
Two families united by one cause.
On #BBCBreakfast on Monday an exclusive interview with Jo Slater and Lindsey Burrow on caring for their husbands Ed and Rob who are living with MND
@BBCNews @BBCOne from 6am
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Proud to be standing with Kev’s Running Home for Christmas Challenge setting off on Sunday from Liverpool. 🏃♂️
We are joining him on Day 2 as he sets off from Gloucester at Kingsholm 🏟️ at 7.00am.
Keep updated here donate.giveasyoulive.com/fun…
#runninghomeforchristmas #7in7in7
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Reflecting on a special weekend to raise awareness and funds for MND but also to remember the great Rob Burrow and Doddie Weir.
Well done to all the players for lacing up and putting on a great show. To see so many legends from both codes laughing and mixing together was brilliant. Congrats to the Rob Burrow legends for taking home the first, of what we hope will be many, 745 trophy.
Lastly thank you to all the supporters who travelled from across the country to get behind the teams and behind MND. I wish I could thank you all individually, you made it a special day.
Next year?? 😁❤️
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I want to thank everyone @saracensofficial for their support and generosity. You made us feel extremely welcome. The efforts of those supporters raising money and the humbling reception - thank you for all your hard work. It was a special day for me and my friends.
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Craig raises a massive point in this interview. The psychological impact of this disease is just as devastating as the physical impact. My wife and I, were left to drive home half an hour after receiving my diagnosis and didn’t hear from anyone in the health service for three months. Well done for talking about it Craig.
"Once you leave that room, it's just you with your own thoughts."
Craig Eskrett tells #BBCBreakfast why more psychological support is needed for people with #MND
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RIP Scott, I hope you are swinging a few clubs around the golf course now. Love to your family x
We are so sad to hear of the death of our great friend and Foundation supporter Scott Stewart. Scott faced his MND with such strength and was determined to shine a spotlight on what he and thousands of others face every day.
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❤️
The outpouring of love & support for @EdSlater and his family over last few days has been incredible. ❤️
We have set up an email to send messages, suggestions & ideas to whilst we work through next steps.
📧 4Ed@gloucesterrugby.co.uk
🔗 bit.ly/JustGiving4Ed
Thank you.
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Two great people and causes coming together for MND. I have been fortunate to know @Hambofoundation for years now, his attitude towards life and his work to support others facing challenging circumstances is a real example for us all.
It seems only natural to see the @Hambofoundation join forces with @MNDoddie5 . 2 great men with a drive to support others and with a smile on their faces.
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MNDream Team 🚴
Track here : geotracks.co.uk/live/2985
Donate if you’re able to here : gofundme.com/rideagainsttime
Let’s keep moving forward
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Obviously I’m gutted to leave the field injured again having worked hard to get back to fitness but most importantly, what a 5 points from the team! I’ll get back to returning to fitness and look forward to watching this team for the next few weeks. #glawsfamily @gloucesterrugby
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I used to think injuries were the end of the world.
Now I know even in the hardest moments, life presents opportunities.
MND is unimaginably difficult, but it’s also given me unexpected gifts.
I’ve met incredible people, felt overwhelming support from friends and strangers, and together with Gloucester Rugby & the GR Foundation, built @4edfundraising to help others living with MND.
Most importantly, I get to spend almost every day with my wife and kids—seeing them off to school, welcoming them home, sharing precious time.
Is it ideal? No. I can’t wrap my arms around them, ride bikes, drive to clubs, or play in the garden.
But being here, present in their lives, is an opportunity and privilege I’ll never take for granted.
Keep looking for those opportunities. 👌❤️
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So proud to be able to share the news that we have surpassed the £100,000 mark in grants awarded to people and families affected by MND.
With the help of so many fundraisers, supporters, volunteers and the team behind @4EdFundraising we are able to help my mission of relieving some of the financial stress that comes with a diagnosis of MND.
I want to show people that we are together in this journey. I feel that the best way I can show this is by supporting them to do the things that they want or may need.
Keep supporting us so that we can help more people to #KeepMovingForward ❤️
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Great morning at Kingsholm for the 4Ed MND Breakfast. Here I am with John Chart who travelled up from London with his wife, Arlene. Looking forward to getting behind George and the team this season. Everyone looking sharp in the build up to Saracens in two weeks. Come on @gloucesterrugby 🔥
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Two codes. One cause.
I’m proud to bring the 745 Cross Code Rugby Game back — union vs league standing together to fight MND. Every ticket sold helps families like mine and funds vital support.
📅 9th November — Kingsholm Stadium, Gloucester
🎟️ Tickets: 745game.org
Let’s pack the stands and show what the rugby family can do. #745Game #RugbyFamily #MND
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Hell of an effort from our lads, and a tough result to take. Always a privilege to play in European knock out games. Good luck to La Rochelle for the rest of the competition. Switch back to climbing up the table in the Premiership now.
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I have started a blog at edslater.co.uk for anyone that might be interested. A short start but I will add stories from Rugby and updates about life with MND. Anything you would like to know more about, suggest below! 😊
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Ride Against Time for MND. 350 Miles in 24 Hours. Please Donate by using the link gofundme.com/rideagainsttime
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Happier than a pig in..... watching @gloshartpury win, chatting with my mate and eating crisps.
Watching my favourite rugby team, wearing my favourite football team 😁❤️ #cafc
A lovely moment as Ed Slater watches on alongside Billy Twelvetrees at Queensholm ❤️
@gloshartpury | @gloucesterrugby
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#ICYMI – We are delighted that the @4edfundraising campaign has been adopted by Gloucester Rugby.
Together with Gloucester Rugby Foundation, we are hoping to make a real difference for those people living with MND in our local community. Me and my wife, Jo have been taking our time to consider what we can do to help other people after the amazing response from so many people that have helped me and my family.
The aim for us is to help other families and individuals who are living with this awful disease in and around Gloucestershire. This county is our home, we love the area and we know that there is over 90 people living with MND in Gloucestershire alone. The nature of MND means equipment and care is absolutely essential to support people living with this illness and whilst the NHS does everything it can, it has limitations which don’t always extend to providing everything someone may need to make the years more comfortable. We are also hoping that we can help families have access to funds that will give them opportunities to create memories together alongside care and equipment.
I will update the link in my bio to provide more details on how you can help and where you can help. Love to you all and thank you.
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Thinking of Jason and his family. Well done on coming out and speaking about this devastating news. Let’s keep pushing!
Former Wales footballer Jason Bowen has been diagnosed with motor neurone disease.
The 50 year old told the BBC about the reaction of his wife and three sons to his news about MND
bbc.co.uk/news/uk-wales-6482…
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Delighted to join these brilliant players in renewing my contract at Gloucester. It’s been a great place to play rugby and I look forward to continuing on in Cherry & White. #glawsfamily
✍️ SIGNINGS
@gloucesterrugby announced that Willi Heinz, @Franco2Marais, @edslater, @thorlo and @Billy_12trees have all signed new contracts to remain at the club during half-time of the @bathrugby game on Friday.
Find out more 👉🏻 gloucesterrugby.co.uk/?p=288…
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Im excited to tick off my first bucket list holiday by travelling to Australia in October with the family. Visiting lots of old friends and working our way up the east coast from Sydney. Suggestion of places and things to do always welcome 😊.
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Incredibly grateful to this special team. They continue to inspire, not only my kids who are huge fans but me as well. Thank you @Glos_PuryWRFC from me and all my family x
The @Glos_PuryWRFC players have chosen to donate their match fees from Saturday’s Allianz Premier 15s final to the #4Ed campaign, set up to raise funds for Ed and his family following his diagnosis with Motor Neurone Disease.
One club. For Ed.
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Good news that £30m has been allocated with the help of @united2endmnd. Another £20m will be used for applications and grants to Universities and research institutes. I want to know if this is part of a longer term commitment to funding MND research and finding a cure.
'Is this a start of longer term commitment to MND funding and will it continue once the £50m is spent?'
Health Secretary Steve Barclay is questioned by former Gloucester rugby union star @EdSlater, who was diagnosed with motor neurone disease
bbc.co.uk/news/topics/c40rjm…
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I was lucky to play with George for the first 2 years of my career, and he taught me a hell of a lot about the game. It’s great to be able to work with him again and I’m excited for what he will bring for the team and the club. #WelcomeGeorge
We’d like to introduce you to our new Head Coach…
We’re sure you’ll join us in giving him a warm #glawsfamily welcome! 🍒
#WelcomeGeorge
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My uncle and his mate Mark (ardent Tigers fans) donning the 🍒 & ⚪️ at Welford Road. A pint on the Crumbie, is where you’ll find me soon 😁. (They won’t be wearing them when Glos play Tigers!)
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The wrong result 😉
Great day with fellow MND battler Matt Gallagher at Birmingham City. Despite my team losing, it was good to catch up with Matt.
To top it off, I got to meet Charlton royalty, Alan Curbishley. #cafc
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Being a Charlton fan is possibly one of the most depressing forms of existence someone can choose for themselves...#cafc
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A brilliant evening at the #JGAwards. So many incredible people working hard to raise money and awareness for lots of great causes. We were proud to support Lindsey collect the Special Recognition Award for Rob Burrow ❤️
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In other words, they want to use players that have come through the 20s pathway irrespective of whether those guys are playing or not. Sounds like the pathway from age group rugby trumps form to me. Who comes up with these ridiculous ideas…
What the RFU performance director Conor O'Shea said when asked why Zach Mercer wasn't included in the 27-man England A squad to play Portugal on February 25. #ENGvPOR #EnglandRugby
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I’d love to see Leicester City win the Premier League again. They look like they’re a tight unit who are enjoying themselves, smart manager and ownership!
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Two of my best mates on board with the Warriors now. Going to have to find my way to Sixways when Gloucester aren't at Holm 😁. Spoilt for choice!
🔥 WARRIOR ANNOUNCEMENT 🔥
Billy Twelvetrees joins Worcester Warriors as a player-coach! 💪
“Billy’s impact will be felt every day.” – Matt Everard
#COYW #WeBuildTogether #TwelvetreesIsAWarrior
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My silence isn’t a choice. If you had 21 seconds left to speak what would you say?
😶 Take 21 seconds of silence.
📱 Text '21SECONDSFORMND' to 70560 to donate & help
🫂 Nominate 3 friends to do their 21 second silence
#GlobalMNDAwarenessDay
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Good luck to the people's champion, Kev Sinfield and his team, who have set off on the latest #7in7 challenge. They are #RunningHomeForChristmas in tribute to Rob Burrow and to continue raising much needed funds for MND.
If you want to support Kev as he sets off from Gloucester tomorrow morning, then join us at Kingsholm before he sets off at 7am. There is Coffee and Tea available, drop in before you go to work 🙂
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