Avoiding Sars2, making art, growing/preserving food. Trying to teach our littles how to live in this mess. Living with EDS and its sack of toothy terrors

Ontario, Canada
Someone told me today that we should ban Charlotte’s Web because kids need happy endings. And that sums it up. We live in a time where we ignore or banish the things we can’t face. It will be our undoing.
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Booked a small cabin while I’m working this weekend. At check-in, proprietor gestures rudely and says, ā€œWhat’s with the mask?ā€ I was tired and waved at him, saying, ā€œprivateā€. He then raises his voice and says, ā€œThis brings back BAD MEMORIES! VERY BAD!ā€
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Omg, here’s a new one: at the grocery store and a woman sees my mask, stops her cart, covers both her eyes with her hands and begins humming VERY loudly until I pass by. Next time I encounter her she speeds up, eyes straight forward and tries to ram me with her cart!!
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I realized something last night about the ā€˜masks don’t work’ crowd; if they were serious, they would advocate for better masks… ones that ā€˜DO WORK’. But, really, they just don’t want to wear a mask. The end.
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A novel virus throws the entire world into chaos, killing millions, then in a matter of a few years we stop tracking it and trash the coherent collection of data? Any thoughtful human on the planet should have a chorus of alarm bells ringing. But nope. All good.
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Maybe a cute bunny will convince someone? Sigh.
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Last year my MIL died from an aggressive pancreatic cancer. She wrote her own obituary and the last line in it was ā€œBe kind. Wear a mask.ā€ It was a hat-tip to our little covid-conscious family. I will think of that gesture for the rest of my life.
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I was thinking today about how people will (as a community service) bend down and pick up dogshit with a thin plastic bag wrapped around their hand but they won’t wear a mask in healthcare.
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If even a FRACTION of the studies are correct, then allowing kids get Covid 10-20 times before adulthood seems like a REALLY bad idea, no?
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In healthcare, a bare-faced practitioner asking a you, masked person, if you prefer they mask is a power-play to make you say the words. They want you to know that they don’t think it’s necessary, that it’s a favour. That you are weak and they are strong. All under the radar.
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Anybody else have an area like this at home?
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I’m at the gas station today and some doofus asks ā€˜hey, whayya still wearin’ that thing?’ A new answer sprung fully formed into my mind and I said ā€˜because I know things you don’t’ And then I laughed way too loud. I think the laugh freaked him out cause he shut up.
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Pretty PPE for my upcoming art show
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ā€œI don’t want to live my life in fear!ā€ I’m asking you to live your life in awareness. Hiding from reality is the opposite of fearless.
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Thoughts? This is a dry-rub transfer onto a black Zimi. It could also be done on a transparent transfer paper for use on a white or pale coloured mask. I did the artwork in watercolour.
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Folks are messed up. They’re just think it’s us instead.
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So, today after having to fight for antibiotics for my child who was bitten by a Lyme-positive tick, my practitioner told me she was only prescribing it for MY mental health. I was also told to ā€œstay off the internetā€.
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Spreading’ the love
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This interview with Dr. Arijit Chakravarty is absolute GOLD. ā€œI think that if you’re out there taking COVID seriously, and if you’re out there still trying to avoid repeated infections, you’re still doing the right thing.ā€ wsws.org/en/articles/2024/12…
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ā€œI know I should wear a mask, but I can’t live like that.ā€ Like what? A life with principle, compassion, knowledge and integrity? No, I guess you can’t. Most people are such weak sauce.
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Just showed up to an imaging appointment and they are cancelling ultrasounds because ALL THEIR TECHS ARE SICK. Reception just can’t understand it. It’s the strangest thing. šŸ™„
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At my medical appointments, I always scan the room for an air purifier. Sometimes they’re hiding and they’re always tuned off. I’m at the point now where I will just stroll over and crank it full-blast without a word. Don’t ask. Just do it.
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Fellow artist came over to my booth (yes, of course, unmasked) asking for antibac wipes and hand sanitizer. Said someone had just coughed all over his stuff. Said he’s a real germaphobe. I’m telling you guys, they just don’t understand ANY of it.
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I spend 100% of my time in public masked. Indoors, outdoors, anywhere the air is shared. My respie is a practical tool but also a symbol. The canary in the coal mine represents an early warning system. That’s us, my canaries.
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If I was younger (still covid-safe) and also looking for working conditions that wouldn’t contribute to my demise… I’d get a dental hygienist degree and set up a mobile service with all the protections. Or a hair stylist. There’s SO MUCH DEMAND.
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My favourite quote of 2025 by Dr. Arijit Chakravarty, ā€œIf you can find a mechanism that would explain why if you don’t go to your local bar for six months it could cause immune dysfunction for the rest of your life I’d love to hear it. I haven’t read that paper yet.ā€
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Conversation: Customer: ā€œOh! You’re wearing a mask!ā€ Me: ā€œYes, with enthusiasm! You’re not?ā€ Customer: ā€œNo, I hope I’m protectedā€¦ā€ Me: ā€œBy what?ā€ Customer walks away. šŸ˜‚
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This pandemic is showing that you can learn less than nothing. You can go backwards.
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My covid-aware friends: You don’t need to be the one who tips the scales. Just keep adding your weight to the right side.
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Seeds of Doubt #3
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Raise your hand if you are sick to fucking death of the outside world trying to erode your sense of concern over Covid harm.
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I’m sure a lot of people react negatively to maskers because they feel they’re being judged. That’s accurate. I’m absolutely judging you.
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This is on the heels of a very disturbing episode with my kids last week and a few other unsettling encounters recently. It makes me wonder how far this will go.
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Even if a cure or a sterilizing vaccine miraculously became available, I would never forgive any of this. The lies, the betrayals, the deliberate ignorance, the pure EVIL of the Covid era is permanently etched. It’s difficult realizing I will be angry until the day I die.
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Washi tape applied to a Kind KN95 and reinforced with fabric or mask tape to stick properly. There are endless patterns and varieties of tape out there.
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I was worried that the Covid-aware would dwindle, washed away by the tides of normies. But I think we are getting stronger… can you feel it?
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Here’s what I’m saying to normies now: ā€œOh, you don’t see it yet do you? Covid wrecked everybody’s health and it’ll only get worse because you keep getting reinfectedā€. That’s it. No explainers, no links to studies. I’m done.
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🧵 I know that making respirators fashionable rubs some of this community the wrong way. I get it. This isn’t for funsies. But it IS a game in certain ways. There are rules and many ways to win or lose.
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I grew the cukes. I grew the dill and the garlic. My grandma taught me how to can over 20 years ago, but this is my first jar of dill pickles!
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Seeds of Doubt #4
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It’s wild to me that parents can be obsessively devoted to their toddler reaching developmental milestones and completely oblivious to what repeat Covid infections are doing to those young bodies and brains.
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I’m really liking this one.
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Who are you magnificent creatures out in public wearing head strap N95s who won’t do THE NOD?? 😭
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I will never tire of protections. My mask-wearing is fuelled by anger, an easily renewable resource.
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People truly cannot conceptualize a thing happening slowly, over time. Covid didn’t kill me so it’s nothing. Gaaaawd. There are universes in between those poles.
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I just saw someone visibly cringe when they saw my mask. Feel the burn, lady. That’s my reaction, too, when I see the newborns out here in this soup.
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Masking is a common sense act by someone who ultimately doesn’t give a shit what others think.
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To all those still protecting themselves, their families and their communities; it’s a beautiful thing you’re doing and it matters. May your masks stay sealed.
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Summer show No. 1. Let's show them how it's done. Masked.
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People know they are sick more but feel very confident that if Covid was actually a huge threat 1. Government would warn 2. Their doctor would say so. Both of these ideas are dangerously, stupendously wrong. #itscovid
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Masking is a simple act of community care to keep people safe from a virus that science CLEARLY shows is dangerous to body and mind. And for some reason this makes people REALLY angry.
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I’m beginning to think that a very large number of people think science is just opinion…
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No spit in my eye, no sars in my nose. My new business motto. Catchy right? #CovidIsntOver
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At my show, I just met a masked paediatrician who takes protecting herself and her patients seriously. They do exist. She was surprised that I’d fit-tested my mask and knew about BlisK12.
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When I think about that statement regarding mask-wearing, (ā€œl couldn’t live like thatā€), I realize normies find our lives abhorrent. It’s weird because the only reason our lives are difficult is because of people like this.
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I sell art in a mask.
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ā€œThere’s no such thing as a Covid infection without consequenceā€. Dr. David Putrino. Please have a listen. It’s a rare, honest discussion about Covid (starts around 34 minutes in). cbc.ca/radio/quirks/mar-15-t…
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Unexpected twist. I just had to defend my mask in French, in an elevator. My French is rusty, but it went like this: when asked if I was sick I said Non. She said ā€œAh, vous avez peur des microbesā€. I replied, ā€œNon, ce n’est pas avoir peur. C’est la science.ā€
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I’ve burned a lot of bridges over the past few years and my kids are homeschooled. I no longer have 1st person accounts of COVID’s toll on people’s health. Are people in your life sicker? Are the kids sicker? I need to be re-tethered… please share your stories.
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And, not to be overly dramatic, but I think we need to be on our guard. I feel something shifting and not in a good way.
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The next time someone asks about my mask, my response will simply be, ā€œthis is just basic public healthā€.
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A whispered fear: ā€œWhat if my infection from 2022 is all it took? What if it’s all for nothing & my health is already lost?ā€ I share this fear. But, fighting this virus is always going to be the right thing to do, come what may. Viral load matters. Number of infections matters.
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Ok day 4, let’s go! #stillmasking
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My parents live next door and have been very supportive. Onboard for all our required precautions. But they went to a celebration of life and could not bear to be the only ones masked in a very judgemental climate. Now my mom is sick.
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So, in the past month, both of my children have been bitten by Lyme-positive ticks. And my concern over this is a mental health problem.
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Sometimes I feel like a ghost in my own life. I’m in the world but not part of it… I reject what 99% of people have chosen. The permapandemic opened my eyes and I can’t unsee the rot.
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I’m Canadian so, correct me if I’m wrong but, aren’t mask bans INCREDIBLY un-American?
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On my way to see my dermatologist who recently stopped masking. Perhaps we’ll have a conversation about canaries.
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Just a note for anyone contemplating hypochlorous acid, HOCl really extends the shelf life of produce if you clean it with HOCl fruit and veggie wash before putting it in glass storage in the fridge.
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My sis has a sore throat. My BIL came by to borrow the riding mower and he was masked, out in the wind, just in case he ran into any of us outside on the property. Respect? Yes please and thank-you. ā¤ļø
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To those jumping in here with their ā€œI dare them to mess with meā€ and ā€œbe aggressive firstā€ and ā€œI project confidenceā€, I just want to gently remind you that people are teetering into violence and please also be careful.
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My 5 year old asked me yesterday, ā€œWhat’s it like to have a cold?ā€. It’s been 3 years and he doesn’t remember. It felt like something big that I can’t quite describe.
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Short rant: Yes. Maskless selfies and group photos by academics, researchers and doctors get us steamed. I wish just ONCE, instead of being defensive, they would look to the heart of our anger and outrage 🧵 1/4
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Replying to @AedricOisin
I really thought, by now, people would calm the fĀ„<€ down but I guess that’s not happening yet.
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Wasn’t going to read it. I just can’t handle the disappointment I often feel reading essays like this… but oh, wow am i glad I did!! I may even send this to my extended family. I’ve been waiting for just the right piece…
Why Are People Wearing Masks in 2025? A Mental Health Professional's Perspective
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ā€œWhat’s with the mask?ā€ If you have to ask, I’m sure you don’t actually want to know.
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I remember, early in the pandemic, how comforting it was to believe that public health leaders and government had our backs. Today, I can’t even imagine being that naive. That trust was replaced with anger and sickening disappointment.
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Following the science on srs2 has meant my kids have a different kind of childhood from what I envisioned. This tears at me. But how could I ignore it or do nothing?
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At the grocery store today I saw a maskless man strolling around coughing. Not unusual, I agree. But when he turned around, I burst out laughing as, printed on the back of his shirt were the words ā€œPUBLIC HEALTHā€.
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For around a hundred bucks (CAD), I put together this cute, quiet carbon air filter to handle those pesky VOCs that hepas don’t deal with. No taping, cutting or complicated assembly…just 3 pieces to order. Link in tweet below.
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The idea of caring for others is so scary for some people. Like, empathy terrifies them. I think seeing others in a mask makes them feel like they’re being forced to care about things they fear, in multiple ways.
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Can’t send my kids to a safe school? Ok. Homeschool it is. No safe dentist nearby? Ok, we’ll travel. Swimming lessons too risky? Bring on the lake weeds and frogs. No K0vyd-safe friends? It’s a bloody miracle, but we found some. I’ll adapt as long as it takes to keep them safe.
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I wonder how many of us in the CC community are currently running on fumes and grim determination?
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Longtime acquaintance diagnosed with new onset diabetes earlier this year. She’s now been off work for 6 weeks after ā€œthe strangest virusā€ left her and several coworkers with vertigo and no taste/smell.
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A girl loved her health, But a virus came & stole it away. So, she let go of that love. A girl loved her friends, But they refused to protect her. So, she let go of that love. A girl loved the birds, But the birds began to die. So, she let go of that love. A girl loved…
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Who needs a romantic dinner by candlelight when you can have a safer dinner by CR box? šŸ˜‚
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Heading into my fall in-person shows, I will be asked about my mask A LOT. I need short answers that don’t send them packing. 2025’s contenders: - It’s a sensible precaution - Best tool I ever owned. - I don’t consent to infection - Harm reduction 101
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You might not know this, but we are at the stage of the pandemic where people who haven’t seen each other in a few months casually compare blood clot stories.
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Just overheard a man bloviating about how he’s paying 12 thousand a year for daycare but his kid is sick all the time and the teachers are sick all the time and it’s not worth his ā€œhard-earned goddamned moneyā€.
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I live much of my life in a mask. I LOVE my life and it is deeper and more meaningful through integrity and community care. Brunch means nothing if you you’re wrecking your health and harming your community.
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They absolutely, 100% believe Covid is just a cold because they absolutely, 100% need it to be true.
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ā€œBut my doctor isn’t worried about Covid!ā€ Science takes years to become medicine. Only a bunch of fools would turn their backs on the precautionary principle wrt COVID. Especially with what science is clearly showing us.
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4 YO Wellness Check today. Not a mask in sight, waiting room full of coughing. Had to ask NP to mask. Expressed my disappointment in the lack of masking. Then before I could react, she PULLED HIS MASK DOWN!! I feel so defeated by it all.
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Society to the children:
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New normal Easter… microbe earrings and rabbit mask.
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I’m a little late with my applause but this is a gem of an article. ā€œIf we were to see immune damage manifesting at a population level, it would look like what we’re seeing todayā€ thegauntlet.news/p/kids-keep…
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#YallMasking ? Absolutely. DOUBLE masking in this case, on my way to periodontist. Readimask all set to go under my Aura.
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I’ve already swallowed a lot of bitter pills in this pandemic but the idea that I’ve done (maybe) progressive damage to my brain from an infection I tried like 🤬 to avoid is too much right now.
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