#pwME patient 13 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
East, Rep of Ireland
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My son developed #LongCovid and #MyalgicEncephalomyelitis at age 7. He is now 11
He doesn't remember what his body felt like when it was healthy.
@HSELive, please help our children;
provide services for #pwME & #LongCovid now
@DrMaireadDB
@brownecfm
@MEAdvocatesIre @TomKindlon
i think about this so much. someone said how a child with long covid would never know what feeling “normal” was, bc they’re so young they have nothing to compare to. i’m horrified after research i’ve read about repeated covid infections, it’s like they never had a chance.
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At a procedure today & 2 med students
took my history
That moment arrives
'Any other conditions?'
Yes,ME
I waited
Finally asked 'what's that?'
Told them
Nodded & laughed 'see, you're teaching us stuff'
Yes,its so funny you dont know about a really common& life decimating disease
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#COVID19 has taken both my children's health.They're living half lives. I've no idea what either of their future holds. In 5 mnths, in 5 yrs
Yet I'm supposed to move around the world pretending to be normal & smile & chit chat with #COVID minimizers.😕
#LongCovid #LongCovidKids
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As a parent with an 11 year old who got sick from a virus at age 7 & never got better,parents out there please hear me... You do not want your child to get #LongCovidKids. Post viral illness is serious & life changing. My daughter attends school just 3 days a week for past 3 yrs.
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Currently lying on floor outside my son's room. He needs me but I can't sit or stand.
His heart rate has gone up as he's crashing. So he's scared & a pounding headache.
I got 3 hrs sleep last night due to my pain.
This is parenting a #LongCovid child w #MyalgicEncephalomyelitis
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Husband Covid+. Myself & kids thought we had it 3 wks ago (son tested positive then)but son & I now have sore throats,runny noses, he has cough.
Son has weak positive test res.
How can it be possible to get it againso soon? Know technically possible but I thought was very rare?
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Genuine question,am I supposed to admit I can't keep my kids safe & send them back to school after their current infection..to get infected again in coming wks or mths. When I have no idea what repeat infections are going to do to their illnesses. Is that being a mother in 2022?
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MS was hysteria;the muscle twitching etc,was psychological til they got brain imaging & saw lesions.
Ulcers caused by stress..till they proved 90% were caused by bacteria.Many examples in history where an illness medics thought was in head turned out to be in body. Yet with ME.1)
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Daughter brought #COVID19 home from schl. Now son is fighting it & his #PANS is flaring (on his b-day)
Husband & I both have it.
Daughter's schl has HEPA filters dont plug them in! 🤯
I hate the world
Lets spin the wheel..whats the impact of Covid no.4 on our family?!
#LongCovid
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A friend tells me her daughter has just been diagnosed w a disease where she might never get well,she might never have a career,she might not be well enough to start a family.3 yrs later, she tells me her son now has the same diagnosis.She has no idea what future her kids have..
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Do ppl understand that ppl die from #MECFS?
Common cause is starvation as the stomach shuts down.
We're now seeing trend amongst #LongCovid patients; where many of those severely ill are seeing huge rapid weight loss. I'm begging parents to take action early if your child 1)
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Min 4 covid cases in my immunocompromised daughter's classroom.Took her out a few days ago.Only had the info cause the principal decided to do the ethical thing and inform us. It may have been too late; this evening she developed a cough #ROAR #LongCovid #LongCovidKids #pwME
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URGENT. Doctor has been recruited from abroad,arrives tomorrow to work in Tallaght Hospital #Dublin.Can't find accommodation! Is just seeking a room to rent. This is a doctor who works in ICU.Ppl will be aware our hospitals are in severe crisis
This doctor is badly needed.Pls RT
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Son diagnosed with post Covid PANS today.Daughter has post viral ME 3.5yrs.I've had ME 8yrs.Not sure how I'm supposed to parent 2 sick kids while being ill. CANNOT contain the RAGE I feel about how little money has been spent on researching post viral illness!
#panspandas #pwME
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My 2 kids can't manage school.They spend most weekends trapped at home. My son cries from muscle pains & headaches.He crawled on his hands & knees to the bathroom yesterday due to weakness in his legs.This makes me sick. You're laughing at the disease that has decimated my family
Long COVID is NOT funny. This is disgraceful from the national broadcaster in Ireland @rte @TheSundayGame
People are in a bad way with Long COVID & your panel LAUGHS at it?
@LCAIreland @LCKIreland @long_covid @LongCovidAdvoc @LongCovidHell @LongCovidKids
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Finally got date for surgery in 2 wks in hospital with a #Covid outbreak
Can't refuse as is urgent
Next date mnths away
Requires 4/5 nights stay
Will be in room w 5 ppl.
I have to accept its very possible will come home w Covid
That risk would be less if staff just masked
Insane
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My little man is turning 10.
He's been ill w #LongCovid
& #Pans since Aug 21(1st #Covid infection) but bad since 2nd in Dec 21. He's lost 3 years of his life to this!
Last year, my husband spoke to @PatKennyNT about his condition
@LongCovidKids @PaulEOC
newstalk.com/news/long-covid…
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My friend's endometriosis surgery that she has been waiting on for over a year is cancelled until at least January. She is in constant pain. This is the cost of people wanting 'freedom'; nightclubs open, no mitigations in schools, letting case numbers surge. #Endometriosis #ROAR
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You'd drop everything. You'd understand the grief & shock.Except not.Not if the disease is #MyalgicEncephalomyelitis. If it's #MECFS the parent doesnt even get a phone call from family to ask how they can help, ppl in your life pretend life is normal,pretend your kids are normal
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Friend's daughter has had stomach pains for years.Consultant told her today 'she'll just have to learn to live with it'. He thinks it's anxiety. Sums up the problem;if they cant, after few tests figure out cause,tell mom it's a psych issue & 7yr old needs to accept being in pain.
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At pre surgery check
Asked me had I had #Covid in past 6 wks & to get in touch to cancel if I get it
However, none of staff masked!
They are doing pre surgical appmts every dy masklesss during a Covid surge knowing that ppl will miss their surgeries if they pick it up! What!?🤯
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Today my son got home from the hospital (PFT) & told me he was sick of #LongCovid & asked me what the point of life is..
@FineFail & @FineGael provided NO SERVICES for #LongCovidKids.
I can only think that they believe my son has fewer rights than adults, the right to healthcare.
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My little #pwME girl got Covid few mnths ago & now she's really unwell again.Worse than ever.Brain fog & memory loss to degree she never had.Getting to a point where we have to entirely stop school? 2yrs living in terror of what Covid would do to her & now it's here. Enraged
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..doctors dont remember these examples. They see normal blood results so therefore nothing is wrong. #MECFS must be psychological they say.
Surely as scientists they should be able to see its the same stupid mistake being repeated..nope, they cant seem to see it.
#pwME #LongCovid
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My daughter's 12 & has #MyalgicEncephalomyelitis
In Oct 2018 she developed symptoms, couldn't focus in schl, weak & exhausted all the time, too tired to be her chatty self, muscle pain, insomnia. GP were honest,said she needed to see a consultant as they didnt know about paed ME
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Hospitals aren't set up for ppl w #MyalgicEncephalomyelitis or #LongCovid
After 3 dys inpatient, I can say it is akin to torture
Without a single room, the noises, lights, chaos & frantic energy.. Chatting from the other 5 ppl in my room evry dy from 5am till 10pm. Torture #pwME
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Wonder how many ppl outside the #pwME and #LongCovid communities know you can be too tired to speak. Literally. And when you gather all your energy and try you slur your words. #NotTired #Awareness #cognitiveimpairment #chronicillness #MECFS #mecfsawarenessday
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I wasnt suggesting the 2 med students did anything wrong.
It is absolutely not their fault they aren't taught this.
Just illustrating this type of encounter it tends to happen every time #pwME attend the hospital. Ranging from this response which wasn't negative, to eye rolling😬
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This is just breathtakingly sad.
I wish Lauren a peaceful ending. I wish the world hadn't utterly failed her.
Please take ME seriously. More Research & we need to urgently STOP the stigma.
We are losing people all the time
#pwME #MyalgicEncephalomyelitis
#LongCovid
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Today I'm heading into hospital to get #COVID
I mean, today I'm heading into hospital for surgery & a 4 nght stay..& to be breathed on by alot of kind & well meaning staff
..the anticipated Covid is just part of my payment along with the bill to vhi!
#LongCovid #pwLC
😷🙄🫣🤫🤔
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Urgently looking for someone w a medical background & knowledge of #FND, supportive of #LongCovid community to speak to...we've a huge no.of LC patients being diagnosed with FND here in Ireland & I need to understand more about the science the neurologists are..
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Son asked me today 'will I still have #LongCovid at my birthday? (Oct) &..will I still have #PANS at my birthday?'..I didn't know what to say.
So angry.I'm angry w the government for not doing anything to keep schools safe.I'm angry that so many parents don't care!#LongCovidKids
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Currently having daily bouts of blind hystetical panic that I've 2 kids who have #LongCovid, #MECFS & no idea when they'll get better. Not sure ppl who haven't experienced having a sick kid get how terrifying it is to not know what your child's future looks like!
#LongCovidKids
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An article about my wonderful little man who is dealing with #LongCovid & #PANS
#LongCovidKids #COVIDisAirborne
#COVID19
Here is the article
Legible if you zoom in
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My daughter, just 12, who has had her life completely decimated by repeat #COVID19 infections will join me in the Dail next wk
So proud of her grace, her bravery & her determination to stick up for herself & for her little brother who is even more severely effected by #LongCovid
Pleased that we've been given permission to bring 2 kids effected by #LongCovid to the Dail next Wednesday for our briefing.
TDs, pls come alone to meet these incredibly brave young ppl & hear about the challenges they're facing.
LC is NOT just an adult's issue!
#LongCovidKids
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Often hear ppl say 'I'd love to help but advocacy isn't my thing'. It's NO ONE'S thing! No one who's sick wants to be advocating,putting their private life, their vulnerabilities out there,begging for something so basic as medical care.None of us want to be here! #pwME #LongCovid
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How absolute dare the UK government decide that contagious children should go to school & spread Covid..
I wouldn't believe it were it not right in front of our eyes
Do you know what the UK government will do when the child beside them gets #Covid & then #LongCovid?
Sweet F All!
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We're effectively trapped in our home.Son has so little energy weekends are for rest so he can manage a bit of school during wk.
We're stuck at home, no idea when he'll be well & my government won't even acknowledge that my son exists.
#LongCovidKids
I'm so so angry
#LongCovid
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If I see 1 more mention of schl attendance problems without mentioning the elephant in the room that is increased illness from Covid & other infections like RSV, measles, strep & without acknowledging that we've a 2nd pandemic of chronic illness in #LongCovid I'm gonna lose it!🤯
Facts
-Covid has not gone, Pandemic hasn't been declared over by WHO
-#LongCovid effects many thousands of kids
-Repeat infections damage the immune system leading to more cases of other bugs
Coverage of attendance without mentioning the above is bizarre!
bristolpost.co.uk/news/brist…
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Health minister talking about pods in schools as a prevention measure is like bragging that he's also implemented a new no licking your classmate policy...kids have always sat in group tables in primary, you don't get to pretend it's a change you've made to stop Covid spreading!
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In a Dublin shopping cntre today..hundreds & hundreds of ppl. I was only one masked.The fight to make ppl understand that #COVID19 is still a risk to every single person has been a long exhausting battle & today I've realised we've 100% LOST that battle
#LongCovid #LongCovidKids
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When I was pregnant on my son & in hospital for wks due to #Hyperemesis..a nurse heard me crying so they had their psychiatrist come to assess me.
That's the way we treat #women
They thought that my being sad because I was so physically unwell was a sign of psychiatric illness!
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In Dunnes today many staff & customers not wearing masks. Irish companies do the right thing & request your customers & staff continue to wear masks. It's the responsible thing to do. How are people who are immunosuppressed and CV supposed to shop safely? #COVID19
@dunnesstores
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That they're seeing some post viral issues in kids after Cov. but very rare,very mild & short lived & they recover without intervention.All these statements are incorrect.This is my 3rd time treading this path. Me,my daughter & now my son.3rd time being gaslit.
#LongCovidKids
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The #pandemic has been a test of our humanity,one which we've utterly failed.
Elderly & CV left to die by hospital aquired #COVID19 infection so the average joe doesn't have to inconvenience himself popping a mask over his face for 20mins.
#LongCovid ppl gaslit & ignored.
Failed
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Has the signs of #LongCovidKids.
Majority of ppl who become severe do not start out that way. Rather they steadily decline.
Common cause of decline is pushing through PEM.This is why we talk about the importance of early diagnosis. Promise you as a parent if your child becomes 2)
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Issue of 9 year olds and older wearing masks in school is what gets a protest going! Government removed contract tracing,letting kids freeze because they wont buy hepa filters...This these parents didnt mind. But put a cloth over your mouth & nose for few hrs a day. Nope! #ROAR
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Think the problem is ppl can't imagine it.
If you're never been ill before for more than a week at a time, the #LongCovid or #MyalgicEncephalomyelitis experience is so far removed from your reality it's almost impossible to put yourself in that person's shoes
#pwME #pwLC #COVID19
Can’t stand in the shower, cant exercise, can’t work, can’t exert yourself even minimally without suffering with a flu like illness for days afterwards. Well this is what covid is doing to previously young, healthy people. Covid doesn’t only affect the elderly & vulnerable.
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Spending my days cleaning up after uninformed clinicians who know NOTHING about #LongCovid & #pwME
Trying to undo the damage they're doing evry time they see a patient w LC & give BAD info
Drs telling their patients they just need a psychologist or a run. Pls stop & get educated
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Feel I've let my kids down.I couldn't stop them getting infected.Couldn't stop them getting #LongCovid.My husband is in office 3 days a wk. No mitigations in place anywhere at all in Ire. How long till they get #Covid again? how will 4th infection effect my son?
This is insanity
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My little boy 6yrs ago
I didn't know then that we live in a world where millions of ppl could become #disabled over 3yrs & the rest of the world would try to ignore their existence
This is before I knew he'd spend 23mths &counting missing his childhood
#LongCovid #LongCovidKids
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Daughter who has #MECFS for 3yrs & recent massive deterioration past 6mths from suspected Covid has now been exposed again.Child who sits right next to her in school.I am so so tired of this rollercoaster. She is panicked. Her immune system can't take another hit
#LongCovidkids
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Severely ill w LC, you'll need to know you've done everything to care for them from the start. There are many parents out there w sick children who
a) dont know its LC because they aren't educated about LC
b) are in denial.
Those children likely to become more sick as they 3)
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A piece in today's @Independent_ie on my children's conditions and my own ME, and the potential genetic susceptibility to post acute viral illnesses.
#MyalgicEncephalomyelitis #LongCovid
#pwME #pwLC #LongCovidKids
#PandasPans @IrishMECFS
@PandasPans
independent.ie/life/health-w…
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Persist with their daily routines.
We'll likely see more fatalities from #LongCovid over the coming yrs. We'll need to ensure those deaths are recorded as LC. Same fight was waged for ME deaths to be recorded as such. Parents need to understand the risks of ignoring symptoms 4)
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Little man w #LongCovid already on the brink of a crash cause he is excited about his birthday
Remember, emotional energy is energy use just like physical & cognitive.
His body punishes him for what should be a happy wk, fun for a change..
& once again, I say F u to this illness
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My husband @PaulEOC will be in studio talking to @PatKennyNT this morning at around 11am. about our son's #LongCovid.
We're grateful for this coverage as children have been left out of the conversation for far too long
#LongCovidKids
#COVID19 #Ireland
newstalk.com/shows/pat-kenny…
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I see that many Irish schools are now implementing this campaign by sending out notifications to all parents about the importance of attendance.
A conversation about this problem without discussing #Covid triggered health issues is utterly preposterous.
irishexaminer.com/news/arid-…
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Did you know people are suddenly developing #celiac disease after #COVID19?
I didn't until yesterday.
It is an autoimmune condition
Please if youre experiencing any tummy issues after #COVID19 ask for a test.
Any person w #LongCovid should be given #Coeliac blood test.
Pls RT
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My son sits next to a child who has Covid, notified by school this evening. Awaiting antigen tests. Meanwhile took my CV daughter out yesterday due to multiple cases in her class.@DonnellyStephen advises these kids are all getting it from the community not school. This is a joke!
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I'm 39 yrs old, lost 12 years & counting to #MyalgicEncephalomyelitis.
My 2 babies have also developed #ME.
I'm hopeful they'll recover.
BUT if they're still sick as adults I'd really like to tell them someone will give a crap by then!
#JohnVsJonVsME #GreatestMEdicalScandal
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Urgent: KNOW SIGNS & symptoms of #LongCovid
Failing to recognise LC often causes SWIFT deterioration as person attempts to 'push through' with normal life.
Severe fatigue/weakness, insomnia, brain fog, headaches, muscle aches etc... Please RT
#LongCovidAwareness #LongCovidKids
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For #LongCovidAwarenesDay,I want my little boy to be able to play & go to schl every dy & live his life.
If he can't have that right now,I want him to be taken seriously by ALL Drs.
I want other ppl in our life to give a cr*p that he's suffering & to support us
LC is a big deal
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Today I listened to the worst case of medical abuse inflicted upon someone w #LongCovid in #Ireland that I've heard of.
Ppl need to be aware; patients are being traumatised, abused, gaslit; it amounts to psychological torture. The same has been done to #pwME for yrs. Needs to end
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The fury I feel on my behalf of my son reading this..
Seeing the actual image
I'm ashamed to say I feel hatred.
My children very likely wouldn't be ill right now if ppl with post acute viral illnesses had been believed 40yrs ago!
#LongCovid #LongCovidRuinsLives #LongCovidKids
The @covidinquiryuk is shown proof that Boris Johnson wrote “Bollocks” on a document explaining #LongCovid in October 2020.
His dismissal of “ #GulfWarSyndrome stuff” is offensive to the brave servicemen & women who had their lives ruined by exposure to sarin gas.
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Never in my life have I seen something so appallingly misrepresentative of an illness. This is medical gaslighting pure and simple. Shame on them.
#LongCovid
Public Health Minister @jenni_minto has welcomed updates to the NHS Inform website long COVID guidance where Laura, Chris and others share their experiences and what has helped them live with long COVID.
⬇️
bit.ly/NHSInformYourRecovery
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Sadly not surprising.
18 mnths ago we met with a group of Irish clinicians and during it, a kidney specialist advised he was seeing a HUGE increase in demand for dialysis...
#LongCovid
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The pale face & black eyes of a child with #MECFS.
My daughter had her colour back & was managing 4 dys a wk in school for about 5 mths before #COVID caused her to relapse.
Now I have two kids with this haunted look on their face.Pale face Black eyes
#MEAwarenessHour
#LongCovid
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We live in absolute terror of my son who has #LongCovid getting #Covid for a 4th time.
This isn't sustainable for us as a society; repeat infections, no mitigations to reduce transmission, widespread & increasing numbers of ppl disabled
#LongCovidKids #COVIDisAirborne #COVID19
💔 Jake (8) can't afford another #covid19 infection.
How many people can't rejoin society in Ireland because they must avoid covid, for themselves or a loved one?
The UK estimate 10 million people - Prof Stephen Reicher
@IndependentSage 17.02.23
Ref👇
piped.video/clip/UgkxU0_C4Ul…
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Anyone else get an intense feeling of panic when they crash severely? It almost feels like claustrophobia, the space I'm scared of is my body & there is no getting out.
Ppl just have not a clue what #MyalgicEncephalomyelitis is..
I'm moderate, not even severe.
#pwME #LongCovid
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Desperately need advice from #POTS #LongCovid community. Very severe LC patient with diagnosed but not controlled POTS (ivabradine not tolerated other beta bs tried but no luck). Uncontrolled vomiting despite strong anti sickness meds. Has now kept no food down in over 20dys
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Same applies to adults with #LongCovid
New LC patients need to;
1 Recognise likely LC (symptoms are unique +infection history makes it clear)
2 Reduce activity as far as required to reduce PEM
3 Obtain diagnosis
4 Receive active symptom mgmnt strategies incl. medication 5)
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Her brother got #LongCovid in Aug 21 previously healthy.He used to be sad she was too tired to play w him. Now he's worse. Now SHE helps HIM learn pacing. Now SHE hugs HIM when he's fed up by symptoms.
I DON'T WANT to watch my 12 yr old teach my 8 yr old to cope w #chronicillness
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I think I saw someone tweet about this before...
That Ppl with #MyalgicEncephalomyelitis and those with #LongCovid often pee way more times a day than healthly ppl and never make it through the night without
What is it about??
#pwME
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Aim of thread isn't to fear monger.
Death isn't hugely common outcome in #PwME thankfully.
However 25% of those w ME are severe.Many of those entirely bedbound for yrs & yrs, a fate many describe as worse. Unsure of LC severity breakdown yet but may follow similar pattern. End
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I've started to realise that I'm traumatised from speaking to patients & parents effected by #LongCovid in #Ireland, from hearing the way they've been treated by Drs.
The journeys they're having.
There is a tidal wave of grief & appalling suffering
It needs to end
#LongCovidKids
Sadly, we've a fair no. of clinicians in Ireland telling #LongCovid patients that cognitive issues/decline not a physical after effect of #COVID19 & they just need to stop thinking about it all & let themselves get better!
Scary as it's clear that they're not reading the research
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32 yrs old, 22 yrs of this woman's iife lost because the world has ignored #MyalgicEncephalomyelitis.
To those who've minimised, denied& psychologised ME, shame on you.
Your actions, your prejudice are costing lives.
Sadly, similar deaths from #LongCovid are already here.
#pwME
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This is really appalling. She is ill because she focuses on it and worries about it too much?! And solutions outside the medical route such as pilates will make you better?!
This is blatant misinformation
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My beautiful boy was in @Independent_ie yesterday.
He's a smart crazy wonderful fireball of a child, but is not himself since #LongCovid 19mths ago.
#Irish gov seems to think it's ok that he receives no medical care
His Dad & I disagree
#pwLC @PaulEOC
m.independent.ie/irish-news/…
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We're letting ppl off the hook by agreeing with them that there are no treatments for #LongCovid. From working w #LongCovidKids & my own personal experience & my kids, I know how well good symptom management can improve daily life. There is ALOT that can be done w existing meds!
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Was manning an info stand at a GP conference for @IrishMECFSAssoc few yrs ago
Handed a leaflet to a Dr who passed. Whilst munching a biscuit nonchalantly(as if it wasn't real ppls lives being obliterated that we were discussing) she said
'Yeah I just dont buy the whole ME thing'
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Had no idea all autoimmune diseases increase a person's chance of developing cancer. For example,women w #LongCovid/ #pwME & #HPV..the HPV stays active for longer stretches in the body as immune system poor.The longer it's active the more likely to cause severe cervical changes..
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What the pandemic has shown us is that when it comes down to it how frighteningly individualistic western society thinking is..'you disabled people need to stay at home so we can live our lives',they want normality whatever cost to others is. Its eye opening #COVID19 #Disability
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I spend alot of my days talking to parents of children who've #LongCovid, and it's so gut wrechingly sad.
Every day, I'm devastated for these kids.
And more will follow because people are bored of #COVID19 & listening to the truth is just incredibly inconvenient & depressing
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My mother has no career.I've no career (despite a degree & masters in Psych from before ill).Will my daughter have a career?Will she finish school? Prejudice destroys the lives of #pwME. Now doing the same to those with LC.
Please stop.
#MedTwitter
#LongCovidKids
#COVID19
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Not sure what's worse; watching 2 kids pull themselves around our home w #LongCovid & #MECFS whilst I try to keep doing same, so my husband doesn't have to stop working to care for us.. or fact that the rest of the world could NOT GIVE A SH*T!
..that MILLIONS disabled by #COVID19
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Dear media, please call this out
An apology is needed
@VirginMediaNews @TonightVMTV @FergalBowers @Independent_ie @NewstalkFM @drivetimerte @SeanMoncrieff @IrishTimes @irishexaminer @NiamhJimenez @paulmurphy_TD #LongCovid #RTEGAA @RTEsport #TheSundayGame #LongCovidKids #COVID19
My 2 kids can't manage school.They spend most weekends trapped at home. My son cries from muscle pains & headaches.He crawled on his hands & knees to the bathroom yesterday due to weakness in his legs.This makes me sick. You're laughing at the disease that has decimated my family
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35% increase in hospitalisation of children with Covid in past 1 week in US! Ireland isn't equipped to cope if similar happens here. If people could stop saying Covid is no issue for kids that would be great! #ROAR #COVID19 #LongCovid #WeDoNotConsent
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Really good piece on @Channel4News
#pwME
#MECFS
#MyalgicEncephalomyelitis #LongCovid
channel4.com/news/m-e-lives-…
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All autoimmune diseases effect more women vs men
Yet if you happen to have a disease where women are more effected AND theres no agreed diagnostic biomarker yet, youre f**ked..because as a society, we don't believe women!
As a society- if its a woman, then it's prob a psych issue
Medicine's reaction to #LongCovid is an attack on #women.
Lack of enough biomedical research, attempts to categorise LC as psych/funct.
Daily minimising
Gaslighting!
If LC effected more men we
wouldn't be here 3.5yrs in!
The story of LC is a classic case of medical gender bias
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Thanks so much for all the kind words. In a low moment,makes the difference to have someone who gets it...say something kind.
He is settled now (hopefully won't wake too many times). Finally got to bed myself. The husband working from home tomorrow so can help thank the gods 😂🥳
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