Meet Brant Boersma, son of Dane Boersma the founder of @DutchBros who was diagnosed in 2005 w/ #ALS. After Dane's passing & in memory of his father, Brant founded a new passion, to raise funds for ALS research. Read about Brant's dream. strongly.mda.org/do-you-know…#EndALSwithMDA
MDA mourns the passing of @oakridgeboys superstar @joebonsall from #ALS. He was a great champion of our community & a mainstay of the band for decades. Our sincere condolences to his family, bandmates, friends & fans. We remember his support for our community w/ the hit “Elvira.”
We sat down w/ @yourpaljess from @92Y to discuss how #GivingTuesday transformed into an international day of generosity & hope. This year support #MDAGiveStrength to give kids & adults w/ muscle diseases the strength to eat, breathe & walk. Learn more: bit.ly/GivingTuesdayHistory
Our generous partner @harleydavidson has donated a brand-new custom $30,000 2019 H-D Road Glide Special & ultimate Milwaukee Experience to benefit our #RideForStrength! Get your bid on here: bit.ly/Bid4Charity
.@KevinHart4real is right – one dollar, one million dollars – whatever you can give will help us ensure everyone has equal access to opportunity, care, & scientific research! Please consider a gift at mdagive.org & see you Oct. 24 on @LOLNetwork. #MDAKevinHartTelethon
It's #NationalTellAJokeDay, and #MDA National Ambassador Ethan LyBrand is joined by his favorite comedian, Ben Schwartz! This duo is guaranteed to make you smile. Show them some love by donating: mda.org/donate#JokeOfTheDay
Thanks to our special guest, @rejectedjokes!
This #NationalFamilyCaregiversMonth, we honor parent caregivers like @limpbroozkit's mom & dad. As Brooke navigates life with #ALS, her parents are right there—offering support, coordinating care, & respecting her independence.
We can’t wait to see Jace & his family at our Parade of Heroes! 1 more day until we celebrate the strength & passion kids like Jace bring to keep our fight going strong. Show your support in our fight against muscular dystrophy: bit.ly/MDAdonateRFS#RideForStrength#hd115
Bid here: bit.ly/Bid4Charity It’s the final 2 days to bid to win a 2019 @harleydavidson Road Glide Special and ultimate Milwaukee experience prize package! All proceeds benefit MDA and our mission to transform the lives of people affected with neuromuscular disease.
MDA President & CEO, Donald S. Wood, Ph.D introduced the #MDAconference keynote speaker, #ALS patient and advocate Brooke Eby! Brooke's speech left us inspired and motivated to approach our work with renewed focus and determination. Stay tuned for the link to watch! @limpbroozkit
Thank you to all of the riders in today's @HarleyDavidson#HD115 parade who #RideforStrength and helped raise money to help find a cure for neuromuscular diseases.
A BIG thank you to @kevinhart4real & ALL who showed up for & tuned into the FIRST #MDAKevinHartTelethon! Tonight we've raised $10,548,454 - and we're not done yet. Visit thetelethon.org for more ways to give & advocate so that ALL have equal access to care & opportunity.
.@BrandonBarash lost a childhood friend to a rare form of #musculardystrophy and has been involved with the MDA ever since. As an actor, father and advocate for the MDA learn how Brandon finds the strength to help others and work to be part of the change. bit.ly/IWILL4MDA_Brandon
Thank you to our partners @JiffyLube who will be matching every dollar you donate to the #MDAKevinHartTelethon, up to $100,000, through Saturday, October 24! Please go to bit.ly/jiffylubemda TODAY – every dollar you give means two to @MDAorg thanks to our friends @JiffyLube!
Hi Brian! We stand with you and look forward to supporting and working diligently to pass a strong #ACT4ALS bill ASAP. We hope it gets reintroduced soon! @MDA_Advocacy
1-week from today is our 22nd Annual #NYMuscleTeam gala, a night dedicated to helping kids & adults live longer & grow stronger. Can’t wait to see @WWE Hall of Famers @_SgtSlaughter & @real_steamboat there! It’s not too late for you to join us. bit.ly/MuscleTeamTix
Honored to have @Colts@TheNyNy7 as our 2021 National Spokesperson! Nyheim is a longtime supporter & #MDA family member. We look forward to working with him to raise awareness & funds to support people living with #neuromuscular diseases. mda.org/press-releases/muscu…
On Friday, May 10th, support MDA on our journey to #EndALSwithMDA by honoring Dane Boersma, who lost his life to ALS. Visit a @DutchBros location to Drink One for Dane. Your purchase will support MDA’s ALS research to help find effective treatments and cures.
For 15 years, @DutchBros has raised funds for #MDA in honor of their co-founder Dane Boersma who lost his life to #ALS. This year $1,908,745 was raised, funding research, care and advocacy to find treatments and cures to #EndALS. THANK YOU, Dutch Bros! mda.org/press-releases/dutch…
On behalf of all of us at MDA, we are so very sorry for your loss. His life brought so much joy & hope to so many people. Your family’s love for him was & will always be the definition of what family means. We are grateful to have known him & his memory is a blessing to us all.
Our partner @harleydavidson will be live in Milwaukee with our National Ambassador Faith! Tune-in on our Facebook page at 11:00am CT to hear how MDA, Faith and H-D riders are celebrating Harley’s 115th Anniversary this holiday weekend. #RideforStrength
Thank you to our H-D riders who participated in the #RideforStrength this past weekend at #HD115 in Milwaukee. Our 38-day challenge isn’t over yet. Help us get to $1.15MM. bit.ly/MDAdonateRFS
#ALS patient and advocate @limpbroozkit receives multidisciplinary care at an #MDA Care Center, providing her with access to top-tier medical experts and comprehensive support services. Learn more about the impact of our Care Center Network: MDA.org/EndALSwithMDA#EndALSwithMDA
While there is no treatment to reverse the progression of #ALS, there are treatments that can slow the disease course. No one should be alone for this journey. If you are diagnosed with ALS call the MDA resource center 1-833-ASK-MDA-1 or email resourcecenter@mda.org.
TY to our @harleydavidson riders who inspire strength during this season of giving. “For Rupert, my stepson who is 35 and living with Duchenne Muscular Dystrophy. MDA gives us the comfort in knowing we are not in this fight alone.” #MDAGiveStrengthbit.ly/Fundraise4MDA
Ed Tessaro, an admired member of the MDA community, has turned his ALS diagnosis into a platform for advocacy helping people understand and learn more about the disease as we work to #EndALSwithMDA. Learn more about Ed's impact here. strongly.mda.org/als-led-ed-…
.@Target's latest women's fashion line, Universal Thread, was designed with all bodies in mind, including those with disabilities and sensory-sensitivities and will be available in stores and online starting Feb. 4. #UniversalThreadow.ly/DgLC30i1M8E
Congratulations to @MeritCudkowicz, MD, MSC from @MGHNeurology and renowned neurologist and clinical researcher in #ALS, the recipient of the second annual #MDA Legacy Award for Achievement in Clinical Research. The award was presented this morning at the 2023 #MDAconference.
#MDA is wishing our National Spokesperson @TheNyNy7 a speedy and full recovery. We are grateful for his support of our mission to accelerate research, advance care, and advocate for MDA families and send our love to him, his family, & #BillsMafia. #TogtherWeFight@BuffaloBills
Safe travels to our @harleydavidson riders on their #RideforStrength journey to Milwaukee to celebrate #HD115 & their commitment to help transform the lives of people affected by neuromuscular disease. Sponsor a rider & help find cures & save lives today! bit.ly/MDAdonateRFS
One year ago, we lost a man who helped shape the Muscular Dystrophy Association into the organization that it is today. We are forever grateful for the love, passion, and generosity of the great Jerry Lewis. ❤️
👏🏼 @rhyshoskins and his wife @jaymehoskins hosted a Muscular Dystrophy Association @MDAorg fundraiser tonight at Yards Brewing
Phillies ownership, management, teammates were there to meet with Phillies fans
Hear from Rhys on NBC10 News at 11PM and Philly Live Sports
#ThankYou to all who participated in this year’s #DrinkOneforDane fundraiser with @DutchBros. Your generosity and support helped raise $1.39M in our fight to #EndALS! It's not too late to pick up your limited edition mug and sticker combo at dutchbros.com/endals!
On Labor Day our #RideforStrength team rode to Milwaukee to celebrate @HarleyDavidson’s #HD115 anniv & raise funds to benefit vital research. We are closing in on our goal but need your help to get us to $1.15M. Click the link in our blog to donate today. bit.ly/HDJourney
#MDA is pleased to announce @limpbroozkit, #ALS patient and advocate, as the Keynote Speaker at the 2024 MDA Clinical & Scientific Conference. Her presentation will take place on March 4 at 10am ET. Read here for more details: mda.org/press-releases/brook…#MDAconference
“I have spent my life wanting to make a real change in this disease. Finally, we may be there. I am very hopeful. This is an emotional time for people in the field,” said Dr. Jerry Mendell of Nationwide Children’s Hospital in Columbus, Ohio statnews.com/2018/06/19/sare…
Its National #FireFighterAppreciationDay! Join us in thanking @IAFFNewsDesk #firefighters across the country for going above & beyond the call of duty to support #MDA in our goal to transform the lives of individuals living with related #neuromuscular diseases. Thank you!
Join #MDA & @HarleyDavidson for its first virtual #RideForLife ride taking place #LaborDay weekend in support of children & adults living with neuromuscular diseases! Register and donate today! Also, tune into the Celebration Ceremony Sept. 5 at 1PM ET! bit.ly/VirtualRideforLife
Today is #DrinkOneForDane! Head to your local @DutchBros for an afternoon drink & support #ALS research in honor of Dutch Bros founder Dane Boersma. Can’t enjoy a drink in store? Help them reach their goal by donating online today: dutchbros.com/ENDALS
BREAKING NEWS: #MDA’s funding of foundational research leads to new drug approval by the @US_FDA of Duvyzat (Givinostat) to treat children and adolescents living with #DMD. Duvyzat (Givinostat) will be made available in the US by ITF Therapeutics: mda.org/press-releases/mdas-…
Justin, who lives with congenital muscular dystrophy, is attending @WPI with hopes of one day becoming an MD researcher and finding a cure for CMD. #GivingTuesday is Nov. 27, and it takes less than 1 minute to show Justin your #MDAGiveStrength commitment: bit.ly/Fundraise4MDA
For 67 years, @IAFFNewsDesk has been fundraising to save the lives of people living with #musculardystrophy, #ALS, and related #neuromuscular diseases. They are our heroes this #EMSWeek and every week! Thank you to MDA’s National Spokesperson @TheNyNy7 for this special message!
This month in support of ALS awareness month double your impact by donating to MDA to support ALS research and your gift will be instantly MATCHED, up to $50,000, by a generous donor. bit.ly/ENDALS
The @alsassociation, ALS Finding A Cure, and MDA award a $2.5 million clinical trial grant to study novel #ALS therapy. Read the latest at our Strongly blog to learn more. strongly.mda.org/the-als-ass…
Yesterday, the @US_FDA granted expanded approval for @Sarepta's Elevidys for the treatment of #DMD. Join us in celebrating this incredible progress and hear from MDA leaders, families, and care center directors about the strides we've made and the exciting future ahead.
#MDA National Spokesperson & @Colts running back @TheNyNy7 has a personal connection to the critical need to drive awareness, improve care, & advance research for people living with #neuromuscular diseases. Hear his story in our new #PSA & donate today at mda.org/donate